Cancer & Blood Disorders Institute: Patient and Family Support
The Johns Hopkins All Children’s Cancer & Blood Disorders Institute provides a variety of resources to help patients and their families understand and prepare for long-term health and happiness.
Treatment for childhood cancer and blood disorders can mean extended hospital stays and care that lasts for years. At Johns Hopkins All Children’s Cancer & Blood Disorders Institute in St. Petersburg, Florida, we understand that the process can feel overwhelming for families. We’re here to help.
Our compassionate team is ready to guide you throughout your child’s treatment. We’re dedicated to helping patients and their families feel more comfortable — and less anxious — as they navigate this journey.
Whether your child has just been diagnosed or is years into remission, we offer resources to meet your needs.
Support Services We Offer
The Cancer & Blood Disorders Institute offers invaluable support services. While your child is in our care, you and your family will have access to:
- Patient and family relations specialists: Your patient and family relations specialist will assist your family throughout your child’s hospital stay. They serve as a liaison between families and the medical staff. They answer your questions and resolve concerns about your child’s care.
- Child psychology: Our Center for Behavioral Health has a child psychologist dedicated to working with patients at the Cancer & Blood Disorders Institute. They help patients and families learn coping skills to help them deal with developmental and behavioral challenges that arise during treatment. Learn more about the Center for Behavioral Health.
- Child Life specialists: We have two Child Life specialists who work with children receiving cancer or blood disorder treatment. They provide support and education to help your child understand what to expect before, during and after treatment. Find out more about our Child Life specialists.
- Academic support: Extended hospital stays can make school a challenge for children receiving cancer or blood disorder treatment. We provide academic assistance for children while they are in the hospital. This support helps ease the transition when your child is ready to return to school.
- Palliative care: Our pediatric palliative care experts work with patients throughout treatment. They help reduce symptoms and improve quality of life. Learn more about palliative care.
- Social worker: Our unit has a dedicated social worker to assist families. They can connect you to organizations that can provide financial and other support.
- Housing: There are three Ronald McDonald Houses within walking distance of our hospital. They provide temporary local housing for families who have a child in our care. Learn more about the Ronald McDonald House.
- Family events: We organize events, such as group dinners, to promote a sense of community among cancer patient families. These events are open to families who have a child receiving either inpatient or outpatient care.
Information About Our Hospital
We recommend several organizations that support and educate families dealing with childhood cancer. These include:
American Cancer Society
The American Cancer Society is an excellent resource for families needing to learn more about a cancer diagnosis, treatment options and the latest research.
American Childhood Cancer Organization
Families of childhood cancer survivors started the American Childhood Cancer Organization. The group provides support, education and advocacy to all families coping with childhood cancer.
Children’s Dream Fund
We work with Children’s Dream Fund to help make dreams come true for children in west-central Florida who are fighting life-threatening illnesses.
Children’s Oncology Group
The Children’s Oncology Group advances children’s cancer research and provides resources, education and information about clinical trials.
National Children’s Cancer Society
The National Children’s Cancer Society helps families navigate the cancer world during and after treatment.
The Make-A-Wish Foundation helps make dreams come true for critically ill children.
Children’s Cancer Center
The Children’s Cancer Center offers emotional, financial and educational support to families of children with cancer or blood disorders.
Cancer & Blood Disorders Institute: Patient and Family Support Contact Us
For more information or to make an appointment, please give us a call at the phone number below. We serve families in the Tampa Bay area and beyond.