The Comprehensive Hemophilia and Bleeding Disorders Treatment Center at Johns Hopkins All Children's provides expert care for children of all ages.
Children with hemophilia and other bleeding disorders receive expert, coordinated care in the Comprehensive Hemophilia and Bleeding Disorders Treatment Center at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida. Our team treats infants, children and young adults, supporting confidence, stability and long-term well-being from diagnosis through early adulthood.
Why Choose Johns Hopkins All Children’s
Care you can trust from infancy through adulthood
Living with a bleeding disorder can be overwhelming—not only medically, but emotionally and practically. Families often face uncertainty about safety, school participation, physical activity, and long-term health. At Johns Hopkins All Children’s, we partner with families to navigate these challenges, providing comprehensive care and services to address all aspects of their child’s life that are impacted by hemophilia or a bleeding disorder.
As a federally designated Hemophilia Treatment Center, our program meets national standards for specialized care proven to reduce bleeding complications and hospitalizations. Our multidisciplinary team works closely together to provide seamless care, clear communication, and timely support—especially when urgent decisions are needed, including 24/7 hematology consultation for emergencies and urgent care needs.
We offer consistent, age‑appropriate care from infancy through early adulthood (ages 21–25), allowing families to avoid disruptions as their child grows. From early diagnosis to daily management, school planning, and the transition to adult care when they become of age, families can rely on a team that understands bleeding disorders—and understands children and young adults. As a federally funded program, we are also recognized by the Centers for Disease Control and Prevention and the National Hemophilia Foundation.
With the right care and ongoing support, children and young adults with bleeding disorders can lead active, healthy lives. Our goal is not only to treat the condition, but to support the whole child and family, every step of the way.
Conditions We Treat
The disorders we treat include:
- Hemophilia A (Factor VIII deficiency) and Hemophilia B (Factor IX deficiency)
- Von Willebrand disease
- Platelet function disorders including Glanzmann thrombasthenia, Bernard-Soulier syndrome, and May-Hegglin anomaly
- Rare bleeding disorders (Factor I, II, V, VII, XI, XIII deficiencies)
- Hereditary Hemorrhagic Telangiectasia (HHT)
- Factor X deficiency
- Ehlers-Danlos syndrome
- Hermansky-Pudlak syndrome
- Other coagulation disorders
Services We Provide
Comprehensive care that supports your child—and your family
Caring for a child with a bleeding disorder often extends beyond medical appointments. Families must navigate treatment routines, school planning, physical activity, and unexpected challenges. Our services are designed to support children and families through every stage of care, with coordination that reduces stress and builds confidence.
Our multidisciplinary team works together to ensure care is seamless, personalized, and responsive—so families know who to call, what to expect, and how to stay supported between visits.
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Your child’s care is led by a Johns Hopkins All Children’s pediatric hematologist who coordinates closely with specialists as needed. Families receive clear guidance, individualized treatment plans, and consistent communication during both routine care and urgent situations.
Physician consultation is available 24/7 to support families during emergencies or unexpected concerns, offering reassurance and timely medical guidance when it matters most. Outpatient clinics are available in St. Petersburg, Tampa, Lakeland, and Fort Myers to improve access and reduce travel burden for families.
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Our specialized nursing team serves as a consistent point of contact for families, offering education, coordination, and hands‑on support between visits. Nurses help families build confidence in managing treatment safely at home and navigating care in everyday settings.
They coordinate care for infusion services as well as with other providers and specialists as needed. Between appointments, you’ll always be able to reach the nursing team with any patient and family health questions or care needs that arise.
Support includes assistance with:
- Emergency and travel planning
- Communication with schools and childcare providers
- Training for school nurses
- Outreach to camps, daycare centers, and community programs
School visits are available to support safe classroom participation and care planning.
To contact the nursing team, call the Cancer & Blood Disorders Institute main phone number 727-767-4176 and ask to speak with the bleeding disorders nurse.
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Bleeding disorders can affect joints, muscles, and long‑term mobility. Our physical therapists work with patients and families to protect joint health, identify early signs of bleeding, and support safe movement and activity as children grow.
Care plans are individualized and focused on maintaining independence, participation in daily activities, and long‑term quality of life.
Our physical therapists assess patients’ joint and muscle health and risk for bleeds, plan and support management of joints and muscles experiencing bleeds, and plan and support rehabilitation for patients who experience bleeds. They coach patients on ways to strengthen the body and guide them through joint and muscle-friendly exercise routines.
We also assess patients’ needs for adaptive equipment, foot support and orthotics, and coordinate care and consultation services with other specialists.
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Managing treatment at home is a critical part of care for many families. Our integrated pharmacy program supports safe, timely access to clotting factor products and infusion supplies, helping families stay prepared and confident in daily care. We offer expert, cost-effective patient care and ongoing support, including cost-contained clotting factor concentrate and supplies, assay management, 24-hour access, and prompt and timely delivery of products.
The pharmacy team provides:
- Cost‑effective clotting factor products
- Infusion supplies and assay management
- 24‑hour access for urgent needs
- Reliable, timely delivery
The pharmacy program provides savings to you and your health insurance plan, supports the services available through the Hemophilia and Bleeding Disorders Treatment Center, and supports many important clinical services available to you and your family.
Families always retain the right to choose their pharmacy. Our team is available to help families understand their options and make informed decisions that best fit their needs.
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Some families may be interested in participating in research studies or clinical trials that advance the treatment of bleeding disorders. Our team carefully reviews eligibility and discusses potential opportunities with families in a clear, respectful, and thoughtful way.
Participation is always voluntary, and your child’s standard of care is never affected by the decision to participate or not participate in research. Families receive plain‑language explanations of study goals, expectations, potential benefits, and risks, so they can make informed decisions aligned with their values and comfort level. See our clinical trials.
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For many families, genetic testing helps answer important questions about diagnosis, inheritance, and long‑term planning. Our genetics services support families with information that empowers decision‑making and early intervention.
Genetic testing may help with:
- Confirming diagnoses
- Identifying carriers
- Early detection in infants and siblings
- Education and family planning
- Assessing the risk of treatment‑related complications, such as inhibitor development
Families receive guidance and education to help them understand results and next steps in a supportive, thoughtful way.
If you would like to learn more about genetic services or request a genetics consultation, please speak with your child’s care team.
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Dental care can be a source of anxiety for families managing a bleeding disorder. Our team helps ensure that routine and specialized dental care is provided as safely and comfortably as possible, with planning that minimizes bleeding risks and stress for both children and caregivers.
We coordinate closely with dental providers to support:
- Preventive dental hygiene and education
- Care planning to reduce bleeding risk during dental procedures
- Referrals to dentists experienced in caring for individuals with bleeding disorders
Families receive guidance on what to expect before, during, and after dental visits, helping children access essential oral health care with confidence.
For more information on dental services, please speak with your child’s care team.
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Bleeding episodes can affect joints, muscles, and long‑term movement. Our orthopaedic services focus on early evaluation, prevention, and coordinated management to help children maintain mobility and independence as they grow.
A pediatric orthopaedist works in close collaboration with the hematology and physical therapy teams to evaluate joint health, manage complications, and guide treatment decisions. When surgery or advanced intervention is needed, care planning is coordinated to prioritize safety, comfort, and recovery.
Families receive clear explanations, shared decision‑making, and ongoing support to help manage joint health over time.
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As children grow older and start thinking about their futures, preparing for adult medical care is just as important as thinking about careers and education, financial independence, and any other aspect of entering adulthood. Planning for adulthood begins early and progresses gradually, with age appropriate education and support. Patients are guided in developing skills related to self management, healthcare decision making, and independence.
By early adulthood (ages 21–25), patients are prepared to transition confidently to adult bleeding disorder specialists—without losing continuity or support. With our transition care model, we start the transition process at the age of 12 years when we discuss the center’s transition to adult care policy.
Between the ages of 13 and 17, we continue to teach the roles and responsibilities expected of the independent adult. When patients turn 18, we discuss with them information about privacy and consent. At the age of 18, we also support them in developing a plan for transition to adult care, with the coaching of parents and the support of their entire care team, so they’re fully prepared to be treated by an adult bleeding specialist by early adulthood.
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Adolescents and young women with bleeding disorders often experience symptoms such as heavy menstrual bleeding that can be difficult to discuss or manage. This specialized clinic offers a supportive environment where patients receive respectful, age‑appropriate care focused on both physical and emotional well‑being.
Care is provided by a multidisciplinary team that includes a hematologist, adolescent medicine specialist, nurse, and social worker with expertise in bleeding disorders. Together, the team addresses diagnosis, symptom management, education, and long‑term health planning.
Learn more about the Young Women's Heavy Periods and Bleeding Disorders Clinic
What to Expect
Caring for a child with a bleeding disorder can be overwhelming. Families often worry about safety, school, activities, emergencies, and what the future may hold. At Johns Hopkins All Children’s, you don’t have to navigate these concerns alone.
Our team provides coordinated, family‑centered care from infancy through early adulthood (ages 21–25). We work closely with parents and caregivers to create clear care plans, prepare for emergencies, and support your child’s growth and independence over time.
You can expect:
- Clear guidance and communication
- Coordinated care across specialties
- Support during emergencies and transitions
- Care that grows with your child
For our patients, living with a bleeding disorder can affect school, sports, social life, and planning for adulthood. As your child gets older, their health care needs—and their role in managing them—change.
At Johns Hopkins All Children’s, we help teens and young adults build confidence in managing their health. Our team supports our patients in understanding their condition, learning to advocate for themselves, and preparing for the transition to adult care—at a pace that feels right.
Our team provides:
- Care that respects our patients’ voice and choices
- Age‑appropriate education and support
- Help preparing for adult health care
- A team that treats all patients with respect
Resources for Patients and Families
The links provided below are for informational purposes and solely for the user's convenience.
Emergency Assistance
Financial Assistance
Advocacy, Legal Assistance and Education
Our Clinic Locations
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Outpatient Care Center
Johns Hopkins All Children's Hospital 601 5th Street South
St. Petersburg, FL 33701
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Living with a chronic condition affects the whole family. Our social workers provide counseling, emotional support, and practical assistance to help families manage the non‑medical challenges of care.
Support includes guidance with:
We work with parents on age-appropriate ways to help their child learn and develop their own health management skills. We’re here to help you navigate all aspects of your child’s care.
We offer patients and families emotional support, provide individual and family counseling, connect them with appropriate community resources, and support coordination and collaboration with care and community service providers.
If you would like to speak with a social worker, please speak with your child's care team. They can connect you with a social worker.