Greenberg Center for Skeletal Dysplasia
Located in Baltimore, Maryland at the Johns Hopkins Hospital, the Kathryn and Alan C. Greenberg Center for Skeletal Dysplasias brings together a multi-disciplinary team of doctors and staff dedicated to improving the quality of life for persons of short stature through healthcare, medicine, education, and providing resources for patients and their families.
The Greenberg Center is the longest-running clinic for patients with skeletal dysplasias. The Greenberg team provides medical care and resources to persons with dwarfism, trains and educates healthcare providers about skeletal dysplasias, and conducts new research to improve the lives of our patients.
History of the Greenberg Center
Dr. Victor McKusick began seeing patients with skeletal dysplasias and other genetic conditions in The Moore Clinic at Johns Hopkins Hospital in the late 1950’s. In 1957, Dr. McKusick founded the Division of Medical Genetics in the Department of Internal Medicine. By the early 1960’s, Dr. McKusick began attending the Little People of America (LPA) meetings with assistance from Kay Smith and later Dee Miller. He was a co-founder of the Medical Advisory Board of the LPA.
The Greenberg Center was established in 1990 by Kathryn and Alan Greenberg to support Dr. McKusick’s work caring for short stature patients and describing the unique features of each dysplasia diagnosis. With Mr. and Mrs. Greenberg’s generous gift, the Greenberg Center also provides education for patients, their families and their local healthcare providers. Since 1990, the Greenberg Center has given over $100,000 in educational scholarships to individuals with short stature and their families.
Research conducted through the Center has yielded dozens of papers in medical journals and presentations at national and international medical conferences and patient support group meetings, all intended to improve health care for this population. Read a history of skeletal dysplasia treatment authored by Greenberg Center director, Dr. Julie Hoover-Fong. Since 2010, the Greenberg Center has grown to provide medical care and research opportunities for individuals with all types of genetic bone conditions including metabolic bone disorders, orofacial clefts and craniosynostosis.
We offer a wide range of services related to skeletal dysplasias. Please call our office at 410-614-0977 to set up an appointment or to find out more information.
- Comprehensive diagnostic evaluations
- Genetic counseling
- Psychological and social support for our patients and their families
- Coordination of care among the many specialty clinics at Johns Hopkins
- Resources for school and life
Greenberg Center and Collaborative Clinics
- Greenberg Skeletal Dysplasia Clinic
- Johns Hopkins Cleft and Craniofacial Center
- Johns Hopkins Medicine Neurosurgery
- Johns Hopkins Medicine Otolaryngology-Head and Neck Surgery
- Johns Hopkins Medicine Pulmonology
- The Skeletal Dysplasia Program at Johns Hopkins All Children’s Hospital
If you have questions about the Greenberg Center, please contact: