Johns Hopkins Sarcoidosis Center

About Our Practice

The Sarcoidosis Center at Johns Hopkins was established by Dr. Carol J. Johns and is one of the longest-tenured centers devoted to the evaluation and management of patients with known or suspected sarcoidosis in the United States. The World Association of Sarcoidosis and Other Granulomatous disorders (WASOG) has designated our program as a Sarcoidosis Center of Excellence. The Sarcoidosis Center welcomes patients with sarcoidosis in all its forms, including:

  • Common manifestations of sarcoidosis, such as in the lung, eye and skin
  • Less common manifestations, including the brain, heart, liver, bone and kidney 

Johns Hopkins Sarcoidosis Patient Support Group

support

Meetings occur first Monday of the month via zoom from 5:30-7:00 pm.  The upcoming scheduled meetings in 2024:

  • April 1st - Stress & Overall Health | Presented by Dr. Richard Lee
  • May 6th - Lung Function Testing | Presented by Garry Roberts
  • June 3rd - Sarcoidosis: The Outside World and You | Presented by Dr. Ali Mustafa
  • July - No Meeting Due to Holiday
  • August 5th - Sexual Health | Presented by Dr. Ashley Winter

Please reach out to the clinic at [email protected] if you would like more information about these services.

 Join Our Sarcoidosis Awareness Campaign!

Scheduling an Appointment

Prior to scheduling an appointment in our clinic it is necessary to have your records available to our team for review. This comprehensive records review is a critical step to ensure we understand your health care needs, have available the relevant information needed to devise an individualized treatment plan for you, and have a productive initial clinical visit in our Sarcoidosis Center.

Therefore, we ask that you have your referral and medical records faxed to 410-367-2711. It is important to include the following: clinical notes, pathology/biopsy results, imaging reports (including CTs, PET scans, and MRIs), lab results, other tests results as applicable (such as pulmonary function tests, echocardiograms). A complete list of recommended records can be found here.

At this time, the wait time for new patient appointments is 4-6 months.

If you have any questions regarding our records review process, please call our office coordinator at 410-550-2838.

If you are interested in being seen by the Neurosarcoidosis team, please call 443-997-1497. Additional information regarding resources at Johns Hopkins for patients with sarcoidosis involving the heart (cardiac sarcoidosis) can be found on the Johns Hopkins Cardiology website.

Where We are Located:

Johns Hopkins Outpatient Center
Seventh Floor
601 N. Caroline St.
Baltimore, MD 21287

Johns Hopkins Green Spring Station
10751 Falls Rd
Suite 412
Lutherville, MD 21093

Johns Hopkins Bayview Medical Center
Asthma and Allergy Building
Second Floor
5501 Hopkins Bayview Circle
Baltimore, MD 21224

Google Map - Johns Hopkins Bayview Medical Center

Our Sarcoidosis Specialists

  • Edward S Chen, M.D.

    • Medical Director, Pulmonary Rehabilitation Unit
    • Medical Director, Respiratory Care Services, Johns Hopkins Bayview Medical Center
    • Assistant Professor of Medicine

    Expertise: Pulmonary and Critical Care Medicine, Sarcoidosis

  • Michelle Whitfield Sharp, M.D., M.H.S.

    • Co-Director of Johns Hopkins Sarcoidosis Program
    • Assistant Professor of Medicine

    Expertise: Pulmonary and Critical Care Medicine, Sarcoidosis

  • Nancy Wei-Jiun Lin, M.D., M.P.H.

    • Assistant Professor of Medicine

    Expertise: Sarcoidosis

Research

Johns Hopkins is at the forefront of sarcoidosis research, including efforts to improve treatments and better understand immune responses in sarcoidosis. Learn more about our areas of research.