Insights & Press

Evidence-based Outcomes

Key publications from the MIND at Home team:

  • Kallmyer BA, Bass D, Baumgart M, Callahan CM, Dulaney S, Evertson LC, Judge KS, Samus Q. Dementia Care Navigation: Building Towards a Common Definition: Key Principles and Outcomes. Alzheimer's and Dementia: Translational Research and Clinical Interventions.
  • Wolff JL, Peereboom D, Hay N, Polsky D, Ornstein KA, Samus QM. Advancing the Research to Policy and Practice Pipeline in Aging and Dementia Care. Public Policy and Aging Report. In Press.
  • Antonsdottir IM, Leoutsakos J-M, Sloan D, Spliedt M, Johnston D, Reuland M, Lyketsos C, Amjad H, Samus QM. Associations between unmet needs, their protective or risk factors, and health or well-being among care partners of community-dwelling persons living with dementia. Aging and Mental Health. 2023 Feb;27(2):334-342.
  • Sloan D, Johnston D, Fabius C, Pyatt T, Antonsdottir I, Reuland M, Spliedt M, Samus QM. Transcending Inequities in Dementia Care in Black Communities: Lessons from the MIND at Home Care Coordination Program. Dementia: the international journal of social research and practice. 2022 Jul;21(5):1653-1668.
  • Lee YJ, Johnston DM, Reuland M, Lyketsos CG, Samus Q, Amjad H. Reasons for Hospitalization while Receiving Dementia Care Coordination through Maximizing Independence at Home. Journal of the American Medical Directors Association. 2022 Feb 9:S1525-8610(22)00020-2.
  • Reuland M, Sloan D, Antonsdottir IM, Spliedt M, Johnston D, Samus Q. Recruitment of a diverse research cohort in a large metropolitan area for dementia intervention studies. Contemporary Clinical Trials. 2022 Jan;112:106622. Epub 2021 Nov 14.
  • Willink A, Davis K, Johnston DM, Black B, Reuland M, Stockwell I, Amjad H, Lyketsos CG, Samus QM. Cost-Effective Care Coordination for People With Dementia at Home. Innovations in Aging. 2020 Jan 1;4(2):igz051.
  • Black BS, Johnston D, Leoutsakos J, Reuland M, Kelly J, Amjad H, Davis K, Willink A, Sloan DH, Lyketsos CG, Samus QM. Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics. International Psychogeriatrics. February 2019:1-12
  • Samus QM, Black BS, Bovenkamp D, Buckley M, Callahan C, Davis K, Gitlin LN, Hodgson N, Johnston D, Kales HC, Karel M, Kenney JJ, Ling SM, Panchal M, Reuland M, Willink A, Lyketsos CG. Home is where the future is: The BrightFocus Foundation consensus panel on dementia care. Alzheimer’s & Dementia. 2018; 14(1);104-114.
  • Amjad H, Wong SK, Roth DL, Huang J, Black B, Johnston D, Rabins PV, Gitlin LN, CG Lyketsos, Samus QM. Health Services Utilization in Older Adults with Dementia Receiving Care Coordination: the Maximizing Independence (MIND) at Home Trial. Health Services Research. 2018; 53(1):556-579.
  • Samus QM, Black BS, Reuland M, Leoutsakos JM, Pizzi L, Frick KD, Roth DL, Gitlin LN, Lyketsos CG, Johnston DJ. MIND at Home-Streamlined: Study protocol for a randomized trial of home-based care coordination for persons with dementia and their caregivers. Contemporary Clinical Trials. 2018;71:103-112.
  • Samus QM, Davis K, Willink A, Black B, Reuland M, Leoutsakos J, Roth DL, Wolff J, Gitlin LN, Lyketsos CG, Johnston D. Comprehensive homebased care coordination for vulnerable elders with dementia: Maximizing Independence at Home-Plus—Study protocol. International Journal of Care Coordination 2017; 20: 123–134.
  • Davis K, Buttorff C, Leff B, Samus QM, Szanton S, Wolff JL, Bandeali F. Innovative care models for high-cost Medicare beneficiaries: delivery system and payment reform to accelerate adoption. American Journal of Managed Care. 2015; 1:21(5):e349-56.
  • Samus QM, Amjad H, Johnston D, Black BS, Bartels S, Lyketsos CG. A multipronged, adaptive approach for the recruitment of diverse community residing-elders with memory impairment: the MIND at Home experience. American Journal of Geriatric Psychiatry. 2015;23(7):698–708.
  • Tanner JA, Black BS, Johnston D, Hess E, Gitlin LN, Rabins PV, Lyketsos CG, Samus QM. A randomized controlled trial of a community-based dementia care coordination intervention: effects of MIND at Home on caregiver outcomes. American Journal of Geriatric Psychiatry. 2015; 23(4):391-402.
  • Hodgson NA, Black BS, Johnston D, Lyketsos C, Samus QM. Comparison of Unmet Care Needs across The Dementia Trajectory: Findings from The Maximizing Independence at Home Study. J Geriatrics Palliative Care 2014;2(2): 5-12.
  • Hughes TB, Black BS, Albert M, Gitlin LN, Johnston DM, Lyketsos CG, Samus QM. Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs. International Psychogeriatrics. 2014; 26(11):1875-83.
  • Samus QM, Johnston D, Black BS, Hess E, Lyman C, Vavilikolanu A, Pollutra J, Leoutsakos J-M, Gitlin, LN, Rabins PV, Lyketsos CG. A multidimensional home-based care coordination intervention for elders with memory disorders: the Maximizing Independence at Home (MIND) Pilot Randomized Trial. American Journal of Geriatric Psychiatry. 2014; 22(4):398-414.
  • Black BS, Johnston D, Rabins PV, Morrison A, Lyketsos C, Samus QM. Unmet Needs of Community-Residing Persons with Dementia and Their Informal Caregivers: Findings from the MIND at Home Study. Journal of the American Geriatrics Society. 2013; 61(12):2087-2095.
  • Marquardt G, Johnston DJ, Black B., Morrison A, Rosenblatt A, Lyketsos C, Samus QM. A descriptive study of Home Modifications for People with Dementia and barriers to implementation. Journal of Housing for the Elderly. 2011; 25(3): 258–273. PMCID: PMC3167170
  • Marquardt G, Johnston DJ, Black B., Morrison A, Rosenblatt A, Lyketsos C, Samus QM. Association of the spatial layout of the home and ADL abilities among older adults with dementia. American Journal of Alzheimer’s Disease & Other Dementias. 2011; 26(1): 51-7.
  • Johnston DJ, Samus QM, Morrison A, Leoutsakos JS, Hicks K, Handel S, Rye R, Robbins B, Rabins PV, Lyketsos CG, Black BS. Identification of community-residing individuals with dementia and their unmet needs for care. International Journal of Geriatric Psychiatry. 2011; 26(3): 292-8.


Select news coverage of MIND at Home:

The Commonwealth Fund – In Focus: Spreading Innovative Approaches to Dementia Care, Transforming Care

...Johns Hopkins University’s Maximizing Independence (MIND) at Home program, “memory care coordinators” help families navigate their medical care, build skills to manage dementia, and connect with social services. “Their role is to problem-solve and to educate families about what to expect and to show compassion and caring,” says Quincy Samus, Ph.D., an associate professor of psychiatry and behavioral sciences and principal investigator of a trial of the MIND at Home intervention.

WMAR-2 News – Role Reversal: Caring for your Parents (video)

Dr. Quincy Samus discusses some of the warning signs of dementia and the difference between dementia and normal aging.

Health Care Deep Dive News – Alzheimer’s Patients Need Special Care, but Providers Aren’t Ready to Give it?

Lyketsos said an important first step is to make sure hospitals are evaluating patients with the disease....The center developed a program called Maximizing Independence (MIND) at Home, which is a home-based coordination program for people with Alzheimer’s and other dementias. The program lets people stay in their homes, while receiving care through care coordination with community-based agencies, medical and mental healthcare providers and community resources.

Psychology Today – The Comforts of Home: Helping People with Dementia Stay at Home Longer

Samus finds that too many people feel there is nothing to be done for those with dementia. She disagrees, arguing that “Improving quality of life doesn’t require a grand action. Many things we do in everyday life can improve a person’s life and make them more comfortable."

Next Avenue - How People With Dementia Can Live at Home Longer

“Ideally the MIND at Home program would be something that their primary care physician would write a prescription for at the time of diagnosis [of dementia],” Samus says, describing the future of the program as she hopes it will evolve. Participants would stay in the program as long as they remained at home, with costs covered by public and private insurers. Study results are not complete, but Samus estimates that MIND at Home program costs are $2,000 to $2,500 annually per participant.