Expert Neurofibromatosis (NF) Care

About Our Center

If you or a loved one are living with any form of NF, you understand that it can be a challenge to find one center with all the specialty expertise NF demands. The Johns Hopkins Comprehensive Neurofibromatosis Center unites these services under one roof, offering patients a coordinated, one-stop shop for NF care.

Request an Appointment

In-person and telemedicine appointment options are available for initial consultations and follow-up care. Learn more about appointments and referrals.

For patients with suspected NF1 to schedule a genetic evaluation:

Genetics Clinic

For patients with confirmed NF1, and those with suspected or confirmed NF2 or schwannomatosis:

Pediatric Patients

Adult Patients

Our NF Care

Our multidisciplinary clinic combines the expertise of pediatric and adult neurology, neurosurgery, neuro-oncology and genetics.

Dr. Carlos Romo and Marcus Ratley on Overcoming Neurofibromatosis

Dr. Romo and Marcus, who's been living with NF1 for a long time, speak with CBS News about this condition.

Children's Tumor Foundation logo

Children's Tumor Foundation

The Johns Hopkins Comprehensive Neurofibromatosis Center is designated as an affiliated clinic of the Children’s Tumor Foundation, a collaborative network of NF treatment centers, research institutions and community groups. The Children's Tumor Foundation works to fund critical research needs and improve the lives of those with NF.