Expert Neurofibromatosis (NF) Care

About Our Center

If you or a loved one are living with any form of NF, you understand that it can be a challenge to find one center with all the specialty expertise NF demands, such as pediatric and adult neurology, neurosurgery, neuro-oncology and genetics. The Johns Hopkins Comprehensive Neurofibromatosis Center unites these services under one roof, offering patients a coordinated, one-stop shop for NF care. We provide care across the lifespan (pediatrics to adults) as part of one comprehensive team.

Meet our team

Request an Appointment

In-person and telemedicine appointment options are available for initial consultations and follow-up care. Learn more about appointments and referrals.

For patients with suspected NF1 to schedule a genetic evaluation:

Genetics Clinic

For patients with confirmed NF1, and those with any type of suspected or confirmed schwannomatosis (NF2, LZTR1 or SMARCB1-related schwannomatosis, or schwannomatosis NOS) please call:

Pediatric Patients

Adult Patients

NF Research, Clinical Trials and Education

Our multidisciplinary clinic combines the expertise of pediatric and adult neurology, neurosurgery, neuro-oncology and genetics.
  • Clinical Trials

    Researchers at Johns Hopkins and around the world are investigating ways to slow the growth of NF-related tumors and prevent them from forming altogether.

  • Neurofibromatosis Therapeutic Acceleration Program (NTAP)

    Johns Hopkins researchers have founded and lead NTAP – an organization that conducts and funds breakthrough research to accelerate treatment options for NF1-related plexiform and cutaneous neurofibromas.

  • Neuro-Oncology Fellowship

    Our NF specialists are involved in training the next generation of physician-scientists and leaders in the field of neuro-oncology as part of this fellowship program.

Children's Tumor Foundation logo

Children's Tumor Foundation

The Johns Hopkins Comprehensive Neurofibromatosis Center is designated as an affiliated clinic of the Children’s Tumor Foundation, a collaborative network of NF treatment centers, research institutions and community groups. The Children's Tumor Foundation works to fund critical research needs and improve the lives of those with NF.