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Neurology and Neurosurgery

Comprehensive Neurofibromatosis Center

What to Expect During Your Visit

To help your visit go smoothly, please plan to arrive 20 minutes before your appointment to allow time for pre-registration. You can learn more about different types of visits below:

What to Bring

For all visits, please bring:

  • Your insurance card(s)
  • A list of all current medications, including prescription and over the counter (with names and dosages).
  • A list of questions and concerns you would like to discuss with your care team.

If you have recent imaging (such as X-rays, CT scans or MRIs), please upload them in advance using our image sharing portal, if you have not done this already.

New Patients

New patients are those who have never been seen at the Johns Hopkins Comprehensive NF Center or those who have not returned in over three years. The type of new patient visit differs depending on the patient’s age:

See how to schedule an appointment.

Adult Intake Clinic Visit

Location: Levi Watkins, Jr., M.D., Outpatient Center (601 N Caroline St., 5th Floor, Baltimore MD)

During your intake visit, you will meet with our clinic coordinator, nurse practitioner Shannon Langmead, R.N., M.S.N., C.R.N.P. Please bring any relevant medical records (clinic notes, procedure notes, pathology reports, imaging on CD, etc.).

Your appointment will take about 45 minutes. During the adult clinic intake visit, we will:

  • Ask how you were diagnosed.
  • Request your medical history.
  • Discuss current symptoms.
  • Review the records you have brought.
  • Determine if there are any tests or evaluations that will make your new patient appointment with our comprehensive team more valuable.
  • Introduce you to our clinic, and let you know what to expect during future appointments.

You will leave your first visit with a plan, including any orders for testing, referrals to other providers and any evaluations you may need. Completing all required testing and evaluations in advance will help ensure your comprehensive new patient appointment is as productive as possible.

Adult Comprehensive New Patient Visit

Locations: Levi Watkins, Jr., M.D., Outpatient Center (601 N Caroline St., 5th Floor, Baltimore MD) or Green Spring Station, Lutherville, Pavilion II (10753 Falls Rd., Suite 115, Lutherville MD)

After the intake visit, new adult patients are scheduled for a comprehensive visit. During your comprehensive new patient visit, you may have evaluations with several members of our team, and we may schedule additional imaging or consultations for you. We will:

  • Review your imaging scans.
  • Perform a comprehensive exam.
  • Provide education.
  • Address your questions and concerns.
  • Talk about research studies open for participation now or in the future.

This can be a very long day. We try to build in time for you to get lunch, but please feel free to bring snacks. You may also want to bring something to help pass the time between visits (a book or magazine, or a friend to keep you company). We try our best to stay on time, but NF is complicated, and we want to ensure everyone is given the time they deserve during visits. We ask for your patience, and we promise that you, too, will get the time you need with our team to have all your questions and concerns addressed.

Pediatric New Patient Visit

Location: Kennedy Krieger Institute (801 North Broadway, 1st Floor, Baltimore, MD)

Infants and children up to age 16 are seen at the at the Pediatric Neurofibromatosis Program at the Johns Hopkins Comprehensive Neurofibromatosis Center, located at the Kennedy Krieger Institute. New patient visits are scheduled with Stephanie Morris, M.D., and Kelly Wypych, P.A.-C., who will work with you and your child to develop a personalized care plan.

The comprehensive evaluation during your first visit may include:

  • Medical and neurological assessment
  • Developmental and behavioral evaluation
  • Genetic counseling and testing
  • Neuropsychological or cognitive assessment
  • Review of available imaging and specialty evaluations

Returning Patients

Returning patients are those who have been seen at the Johns Hopkins Comprehensive NF Center or Kennedy Krieger Pediatric Neurofibromatosis Program at the Johns Hopkins Comprehensive Neurofibromatosis Center in the past three years.

Returning patients have different types of appointments, which may include:

  • Annual follow-ups: Most patients are seen for follow-ups at least annually. Our office will automatically schedule your annual visit at a similar date and time of day as your most recent visit to help keep you and our team on track. If the time and date do not work for you, please contact us to reschedule. Learn more about rescheduling or canceling appointments.
  • New symptom evaluation: If you need an evaluation for new symptoms or new concerns, please send a message via MyChart, call the NF Center at 410-502-6732 during normal business hours, or call the on-call service at 410-955-5000.
  • Emergency: If there is a medical emergency, please go to the emergency department or call 911.