Helpful Links

Long Covid Physio - A peer support, education and advocacy, patient-led association of Physiotherapists (Physical Therapists) living with Long COVID.

Awareness for POTSies - A non-profit organization providing support to the POTS and chronic illness community.

The Dysautonomia Project - A non-profit collaborative effort to provide dysautonomia education to patients, healthcare providers, and communities.

Solve ME/CFS - A non-profit organization serving as a catalyst for research into myalgic encephalomyelitis/chronic fatigue syndrome, Long Covid and other post-infection diseases.

Dysautonomia International - A non-profit that seeks to improve the lives of those with autonomic nervous system disorders through research, education and public awareness.

Long Covid Alliance - A network of patient-advocates, scientists, disease experts, and drug developers using knowledge and resources to educate policy makers and accelerate research.

The American ME and CFS Society - Serving patients and caregivers living with myalgic encephalomyelitis/chronic fatigue syndrome through support, advocacy, and education.

The Ehlers-Danlos Society - A global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes and hypermobility spectrum disorders.

EDS Awareness - Helping people with Ehlers-Danlos find or organize support groups in their local communities. 

Helpful Documents

Activity Diary Sheet — Use our easy-to-use activity diary to track your Chronic Fatigue symptoms. 

Compression Garments — Learn how compression garments can help you manage your CFS symptoms. 

Cooling Garments — Find out how you can benefit from using cooling garments to help control your symptoms. 

Corn-free Diet — Learn how to begin a corn-free diet. 

Dairy-free Diet — Find out how to start a dairy-free diet. 

Egg-free Diet — Begin an egg-free diet using this resource.

Fatigue and Energy Conservation — Learn how to conserve energy with this resource.  

Gluten-free Diet — Begin a gluten-free diet using this resource.

Low Histamine Diet — Find out how to start a low histamine diet. 

Post Exertional Malaise — Learn about post exertional malaise and how to manage it. 

Soy-free Diet — Use this resource to help you begin a soy-free diet.

Loss of Smell — Learn about a loss of smell, the symptoms and how to treat it.