Build resilience and self-management skills
Our research group focuses on projects that have the potential to improve function and quality of life and reduce disability following injury or illness. These projects include research on cognitive, behavioral, psychological and health care system factors that affect outcomes following injury.
We closely collaborate with partners in the Department of Health Policy and Management and the Major Extremity Trauma Research Consortium in the Johns Hopkins Bloomberg School of Public Health, as well as the departments of orthopaedics, psychiatry, and anesthesiology and critical care medicine in the Johns Hopkins University School of Medicine.
On this page:
We strive to improve function and quality of life after such events as amputation, chronic disease, chronic pain, musculoskeletal injury and orthopaedic injury. Our team is particularly interested in developing assessment and treatment approaches that:
Use risk stratification to match patients with appropriate treatment
Increase patient engagement
Patti Ephraim, MPHResearch Associate, Epidemiology
Johns Hopkins School of Public Health
Tricia KirkhartProgram Coordinator
Johns Hopkins Department of Physical Medicine and Rehabilitation
LaPricia Lewis BoyérProgram Coordinator
Johns Hopkins Department of Physical Medicine and Rehabilitation and the Division of General Internal Medicine
We are pleased to be working in collaboration with the Amputee Coalition, Phoenix Society for burn survivors and METRC - Major Extremity Trauma Research Consortium.
Principal Investigator: Stephen T. Wegener, Ph.D.
Funding Source: Department of Health and Human Services, Administration for Community Living, NIDILRR – Field Initiated Program, Grant #90IF0068
Study Information: Take Charge of Burn Pain is an interactive program aiming to help manage pain following a burn injury. It is designed to work with treatments to help decrease pain and improve function.
Burns are the fourth leading cause of injury and death in the U.S. Despite the best efforts of burn care professionals, burns frequently result in acute and chronic pain, poor functional outcomes, significant psychological distress and impaired participation in life and work for otherwise healthy individuals. People with burn injuries have limited access to comprehensive pain care due to lack of local resources, as well as financial constraints and mobility issues.
Burn pain is not a simple problem: it can affect the body, mind and activity. Pain complicates recovery and can make life difficult. This is where Take Charge comes in. In this program, participants work through a series of lessons on the computer and develop a pain management plan with help from the health care team. Take Charge recognizes that the participant plays an important role in recovery. Participants, working with health care providers, can do a lot to decrease pain, increase activity and improve quality of life. Take Charge uses techniques that have been scientifically proven to decrease pain and increase level of activity.
Recruitment and Participation Information: This study seeks to enroll individuals who experienced a burn injury at least 6 months prior to enrollment. You must be over the age of 18 with access to the internet via a desktop or laptop. Participation involves:
- Completing an online assessment of your pain, function and how you are doing
- Completing seven 25-minute online lessons at the Take Charge of Burn Pain website
- Repeating the online assessment at two and five months after finishing your lessons
Principal Investigator: Stephen T. Wegener, Ph.D.
Funding Source: Amputee Coalition
Study Information: Each year, an estimated 185,000 Americans undergo an amputation of a lower or upper extremity and an additional 1,000 children are born with a limb deficiency. According to the estimates from the National Health Interview Survey, approximately 1.2 million Americans are living with a limb loss. In the United States, limb loss has been acknowledged as a significant public health issue and strategies have been developed to reduce the burden of disease.
PALS Online is an interactive program aiming to help manage life after limb loss. It can help participants:
- Explore the ways their life has changed and how they can move forward
- Take control of their situation and become more active in their recovery
- Understand where they are on the road to recovery
- Figure out what they want to achieve
- Develop the skills to get there
Recovery is challenging and it can be difficult to manage the challenges of limb loss. PALS Online recognizes that participants play the most important role in recovery. It uses strategies and skills that have been scientifically proven to increase self-confidence and feelings of empowerment.
Recruitment and Participation Information: This study seeks to enroll individuals with limb loss over the age of 18 with access to the internet. Participation involves:
- Completing an online assessment about your pain, function and how you are doing
- Completing eight 25-minute online lessons at the PALS Online website
- Completing a second online assessment after finishing the lessons
Site Principal Investigator: Stephen T. Wegener, Ph.D.
Study Information: The TARGET Project is a quality improvement initiative aimed to help patients with acute lower back pain by finding ways to prevent back pain from becoming chronic. The Department of Physical Medicine and Rehabilitation and Johns Hopkins Community Physicians are collaborating with the University of Pittsburgh.