Craniosynostosis: Fitz’s Story

When Fitz was born, it was obvious that his skull was misshapen. By 5 weeks old, Fitz had been diagnosed with craniosynostosis. His skull had fused early and was constricting his brain growth.

Fitz’s parents met with Johns Hopkins pediatric neurosurgeon Eric Jackson, who offered a minimally invasive surgical approach to remove the fused bone, letting Fitz’s skull expand. Combined with helmeting therapy, the surgery has allowed Fitz’s skull to grow in a normal shape and accommodate his developing brain.

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Fitz wearing a helmet for craniosynostosis.

About Craniosynostosis

Craniosynostosis occurs when a baby's skull fuses too soon. The brain continues to grow, so the head begins to bulge. The most common signs of craniosynostosis are changes in your baby’s head and face shape. Craniosynostosis is often treated with a combination of surgery and helmet therapy.

Learn more about craniosynostosis.

Craniosynostosis Treatment at Johns Hopkins

Johns Hopkins pediatric specialists in neurosurgery, craniofacial plastic surgery, genetics, ophthalmology, neuroradiology, anesthesiology and rehabilitation work together to help children like Fitz.

Learn more about Pediatric Neurosurgery.

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