Neurofibromatosis Specialists
Our team of NF1 and schwannomatosis specialists works together to provide the safest and most effective treatment for patients. The core members of our neurofibromatosis care team include experts in genetic counseling, neurology, neuro-oncology and neurosurgery.
Core Team
Emily Little R.N., B.S.N.
Krista Schatz, M.S., C.G.C.
Extended Care Team
Our center has the full expertise of Johns Hopkins at its disposal. If needed, world-renowned specialists from other fields will join your care team. The specific doctors and health care professionals involved will depend on the disease manifestations, symptoms and treatment options. People we work with frequently span a range of specialties, including:
Audiology and Neuro-otology
Dermatology
Jennifer Powers, MD
Expertise: Reconstructive Plastic Surgery, Laser Surgery and Cosmetic Dermatology, Dermatology, Dermatologic Surgery, Mohs Surgery
Oncology
Pediatric Oncology
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Kathryn Lemberg, MD PhD
Expertise: Pediatric Medical Oncology, Sarcoma and Connective Tissue Medical Oncology
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Christine Pratilas, MD
Expertise: Pediatric Medical Oncology, Sarcoma and Connective Tissue Medical Oncology
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Lindy Zhang, MD PhD
Expertise: Pediatric Medical Oncology, Cancer Genetics, Sarcoma and Connective Tissue Medical Oncology
Ophthalmology
Orthopaedic Surgery
Otolaryngology (ENT)
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Francis Creighton, MD
Expertise: Cochlear Implant, Skull Base Surgery, Otology, Neurotology, Otolaryngology