Neurofibromatosis Specialists

Our team of NF1 and schwannomatosis specialists works together to provide the safest and most effective treatment for patients. The core members of our neurofibromatosis care team include experts in genetic counseling, neurology, neuro-oncology and neurosurgery.

Core Team

Emily Little R.N., B.S.N.

Senior Clinical Nurse
Emily Little headshot

Krista Schatz, M.S., C.G.C.

Genetic Counselor

Extended Care Team

Our center has the full expertise of Johns Hopkins at its disposal. If needed, world-renowned specialists from other fields will join your care team. The specific doctors and health care professionals involved will depend on the disease manifestations, symptoms and treatment options. People we work with frequently span a range of specialties, including:   

Audiology and Neuro-otology

Johns Hopkins audiology team.

Dermatology

Jennifer Powers, MD

Expertise: Reconstructive Plastic Surgery, Laser Surgery and Cosmetic Dermatology, Dermatology, Dermatologic Surgery, Mohs Surgery

Oncology

Pediatric Oncology

Ophthalmology

Orthopaedic Surgery

Adam Scott Levin, MD MBA

Expertise: Orthopedic Surgery, Orthopedic Oncology

Otolaryngology (ENT)

Plastic and Reconstructive Surgery

Radiology

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.