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Patient and Family Event

Olfactory Neuroblastoma Patient Education Meeting

On Saturday, Feb. 29, join us to learn about the latest advances in treatment and network with other patients and family members affected by olfactory neuroblastoma. Presenters will include people personally affected by the disease and medical and scientific experts.

Learn more and RSVP.


Patient Stories


Thoracic Spinal Tumor | Brian’s Story

After Brian experienced numbness and back pain, an MRI showed a large schwannoma tumor around his spinal cord.

Brain Tumor | Declan’s Story

Five-year-old Declan had an MRI to monitor a growth hormone deficiency. Afterward, his parents got shocking news: The scan showed Declan had a large craniopharyngioma brain tumor.

Craniosynostosis | Fitz’s Story

When Fitz was born, it was obvious that his skull was misshapen. By 5 weeks old, Fitz had been diagnosed with craniosynostosis.


Charitable Giving

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