Von Hippel-Lindau (VHL) Clinical Care Center

The Johns Hopkins Von Hippel-Lindau (VHL) Clinical Care Center is one of just a handful of centers across the nation recognized by the VHL Alliance for their commitment to patients and families living with VHL, a rare genetic condition that increases your risk of developing certain tumors, most commonly in the brain, spine, kidney, pancreas, eye and ear.

At the VHL Clinical Care Center, a multidisciplinary team of experts from more than a dozen specialties coordinates all aspects of your VHL care — both physical and emotional — and provides you and your loved ones with unparalleled clinical expertise and groundbreaking treatment options. We partner with families from infancy through late adulthood to monitor disease risk and promote optimal health.

Read more about Von Hippel-Lindau (VHL) syndrome in the health library.

Request an Appointment

To meet with our team of VHL specialists or to refer a patient, please contact Johns Hopkins USA:

Our Team


Director of the VHL Center





Endocrinology and Oncology

Endocrine Surgery



Surgical Oncology

Radiology and Radiological Science

Pediatric Oncology