What You Should Know About Cancer Survivorship

From Cancer and Related Treatments

  • Nausea/vomiting/appetite changes
  • Fatigue
  • Headaches
  • Cataracts
  • Pain and numbness (peripheral neuropathy)
  • Dental/gum issues
  • Lymphedema – a buildup of lymph fluid in fatty tissues under the skin
  • Musculoskeletal symptoms\
  • Bone loss and osteoporosis
  • Anemia – a lower than normal number of red blood cells in the blood
  • Concerns about memory loss and cognitive function (“chemo brain”)
  • Radiation -- This treatment, if needed, also can cause some side effects, most commonly, fatigue. However, exercising while receiving radiation has proven an effective way to minimize symptoms of fatigue.
  • Hair loss
  • Weight gain or loss
  • Sleep problems
  • Constipation/diarrhea
  • Heart problems
  • New cancers
  • Blood clots
  • Absence of or irregular menstrual periods
  • Menopausal symptoms
  • Sexual difficulties – Scars or other changes to the body, or feeling bad about the body can result in a lower sex drive or worries about pain during sex or ability to perform. Your doctors or nurses can answer your questions, help correct any underlying medical issues or direct you to a professional counselor.
  • Infertility
  • Surgery -- You may experience side effects from cancer surgery, including body image changes, pain, or other physical or psychological changes. Talk with your cancer surgeon about what to expect before you undergo your surgery.

If You Can: Keep Working

Most cancer patients are able to continue working while they are being treated for cancer. Talk to your supervisor and co-workers about your work needs during cancer treatment. Working maintains a sense of normalcy, reduces stress for many, and can maintain your health insurance and income. Ask your oncology nurse navigator for help scheduling your treatments to dovetail with your work schedule. For example, full-time workers having radiation therapy can schedule appointments at 7 a.m. or 5:30 p.m. to avoid missing work time; such treatments take only 20 minutes. Chemotherapy might be given on a Friday afternoon, allowing the weekend to recover, as drugs may cause side effects 24 hours later. Preventative drugs to avoid side effects from the start also can be incorporated proactively into your treatment plan.

Eat Right

Good nutrition is even more important during and after cancer treatment because the disease and its treatments may affect your ability to tolerate some foods and use the nutrients they contain. Your health care team can discuss good nutrition with you, and there are resources available online through the American Cancer Society and the National Cancer Institute.

Stay Active

Regular physical activity can help manage symptoms like fatigue, improve physical functioning and help you maintain a good outlook.

After Treatment

Understand side effects and how long they are likely to last. See the list under “During Treatment” for more information.

Take advantage of this opportunity to step back and reassess your life. Embrace an active role in creating a new “normal” for yourself – set new short- and long-term life goals; don’t postpone joy.

Transition back to your primary care physician for follow-up medical care. Once acute treatment and short-term monitoring are completed, it will be time to have your long-term cancer survivorship care managed by your primary care physician. There are a few exceptions, such as patients with locally advanced disease or distant metastasis. Your oncology team should give you a treatment summary and a survivorship care plan summarizing your medical treatment to date, and outlining what needs to happen going forward regarding surveillance after treatment, promotion of a healthy lifestyle to reduce the risk of cancer recurrence, and what doctors will conduct follow-up tests. See our primary care section for more information.

Embrace a healthier lifestyle to reduce the risk of cancer recurring or of developing other diseases. Eat a healthy, varied diet low in fat. Don’t smoke, and limit alcohol intake. Engage in regular physical activity.

Seek help for emotional/social issues if needed.

Stress related to your cancer experience may not go away when treatment ends. Support groups and/or individual therapy can help you manage these feelings. Ask your health provider for a referral to an experienced social worker, psychologist or psychiatrist if necessary. The Harry J. Duffey Family Patient and Family Services Program at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins provides professional counseling to our patients, families and caregivers with psychological, emotional, and spiritual needs. For more information, click here (link to http://www.hopkinsmedicine.org/kimmel_cancer_center/patient_information/support_services_counseling.html).

For more information, see the National Cancer Institute guide, “Facing Forward: Life After Cancer Treatment.”

Types of Cancer and What to Know About Cancer Survivorship