Adolescent and Young Adult Patient Navigation

The Adolescent and Young Adult Patient Navigation Program (AYA) at the Johns Hopkins Kimmel Cancer Center is sponsored in partnership with the Ulman Foundation.

Patient Navigator Role

The navigation services, provided by Devon Ciampa, MSW, LMSW, will address the psychosocial needs of adolescents and young adults with cancer through counseling, advocacy and provision of supportive resources.

Adolescent and Young Adult Patient Navigator Mission

To improve adolescents and young adults’ ability to manage their cancer experiences and long-term cancer survival by way of:

  • Identifying the unique needs and of the young adults patients and their families
  • Accessing support resources tailored specifically to adolescents and young adults
  • Empowering young adult patients and their families to take an active role in their cancer experience and support them as they face the challenges
  • Educating the patients and their families’ of their disease, treatment options and lifelong implications of treatment choices
  • Encouraging effective communication with their clinical care team, family, friends, community and others in their support network

A New Approach For Young Adults with Cancer

About Ulman Foundation

The Ulman Foundation, was created by Doug Ulman and his family in 1997 after Doug was diagnosed with cancer during college and had difficulty finding resources for people his age. Frustrated by this void, the Ulman Family established the foundation to create a community of support for young adults (ages 15- 39) and families facing cancer. A leading voice in the young adult cancer movement, Ulman has been working since 1997 at both the community level and with our national partners to raise awareness of the young adult cancer issue, and to ensure that all young adults and families impacted by cancer have a voice and the resources necessary to thrive. The mission of Ulman is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer. We continue to be driven by the goal of ensuring that no young adult has to face cancer alone and remain steadfast in our mission to work for and with young adults and their families as they battle cancer by offering support, resources, and a community that recognizes the profound effect of cancer on young people’s lives. 

Adolescent and Young Adult (AYA) Supportive Resources

Here are some resources that may be helpful as you navigate your cancer journey