Education About Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Disorders
Education efforts from the clinic have expanded with five staff members on the team. We continue to advise pediatricians and other health care providers around the country about techniques and management strategies that have worked for patients at Johns Hopkins Children's Center. Our experts present talks on ME/CFS to national and international groups around the world.
Additionally, Dr. Broussard, Dr. Azola, and Dr. Rowe speak to pediatric residents monthly during their adolescent medicine rotation about the recognition and management of ME/CFS and related disorders.
Educational Videos
Dr. Peter Rowe: An Unsung Hero
Dr. Peter Rowe: Orthostatic Intolerance in ME/CFS: Gains and Gaps
Observations on Long COVID through an ME/CFS lens
A Woman's Journey Presents: Long COVID
Evaluating and Supporting Patients with Cardiovascular Symptoms after COVID
Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long COVID
Talks presented in the 2022-2023 academic year include the following:
- IACFSME Symposium panel: Provocative Maneuvers: Methods to Induce Symptomatic Features of ME/CFS. Tilt Table Testing, 28 July 2022
- Children’s Hospital of Philadelphia Headache Group, Approach to POTS and Orthostatic Intolerance, 1 September 2022
- Long COVID and Fatiguing Illness Recovery Program Webinar, Pediatric Post-COVID Conditions, Family Health Centers of San Diego, the ECHO Institute, University of Washington and University of Colorado, 8 September 2022
- International Congress: Expanding our Understanding of Long COVID and ME/CFS: Treatment and Rehabilitation, ME/CFS: Diagnosis and Management in Children and Adolescents, Finnish Orthopaedic Manual Therapy Association, Tampere, Finland, 7 October 2022
- Riksforbundet for ME-Patienter (RME) Conference, ME/CFS—One Disease, Many Faces, Dysautonomia in ME/CFS and Long COVID, and Relationship between Joint Hypermobility/EDS and ME/CFS, Stockholm, Sweden, 12 October 2022
- Johns Hopkins Child Psychiatry Rounds, Update on Pediatric ME/CFS, 12 October 2022
- Massachusetts Association of School Nurses, Long COVID in Adolescents, 12 October 2022
- Danish ME Association, POTS, Orthostatic Intolerance, and Autonomic Dysfunction in Myalgic Encephalomyelitis, 27 October 2022
- Johns Hopkins, Pediatric Long COVID, Pediatrics for the Practitioner, 28 October 2022
- University of New Mexico School of Medicine, Office of Continuing Medical Education, EDS ECHO Project, Orthostatic Intolerance and Dysautonomia in EDS, 10 November 2022
- Hospital for Sick Children Adolescent Medicine Divisional Rounds, ME/CFS and Long COVID: Overlaps and Opportunities, Toronto, Canada, 11 January 2023
- Hawaii Pediatric ECHO, Long COVID Cases, 18 January 2023
- Arizona Community Grand Rounds, NARBHA Institute and Health Choice AZ, Virtual, Long COVID: Emerging Evidence and Research, Panel Discussion, 1 March 2023
- Rush Dept of Psychiatry Grand Rounds, Pediatric ME/CFS, Chicago; 9 March 2023
- Woodcock Institute of the Texas Women’s University National Conference, What we know and Don’t Know about Pediatric Long COVID, Virtual, Peter Rowe - Medical Manifestations of COVID infection and long COVID in Children and Adolescents; Renee Swope - Impact of long COVID on children, their families and caregivers. 22 April 2023
- Johns Hopkins Pediatric Trends, Camille Broussard - Approach to Chronic Fatigue Syndrome in Adolescents in the Era of Long COVID, 12 May 2023