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Patient Stories

Navy's Story

Before Navy was born, she was diagnosed with a rare congenital heart abnormality called tetralogy of Fallot with an absent pulmonary valve. Because Navy was so small at birth, pediatric cardiac surgeon Bret Mettler suggested she wait until she got bigger to have surgery. After a few months at home, Navy returned to Johns Hopkins Children's Center to undergo open-heart surgery.

Lemuel's Story

21-month-old Lemuel was referred to Johns Hopkins Children’s Center when his pediatrician detected a pathological murmur. An echocardiogram and cardiac catheterization revealed there was a blockage above his aortic valve, resulting in a diagnosis of supravalvular aortic stenosis. In the summer of 2020, Lemuel underwent successful open-heart surgery to repair his valve.

Levi's Story

Born with transposition of the great arteries, 20-year-old Levi Silva required multiple surgeries over his lifetime. In summer 2020, Levi learned he would need to undergo his fourth open-heart surgery. After consulting multiple heart centers across the nation, Levi and his family felt that the Blalock-Taussig-Thomas Pediatric and Congenital Heart Center was the best fit.

Ruby's Story

At 6 months old, Ruby was diagnosed with a heart murmur, and a visit with pediatric cardiologist Joel Brenner confirmed that she had a hole in her heart. As Ruby grew, the hole in her heart grew larger until at 4 years old, Dr. Brenner told her family that Ruby would need surgery within the year.

 

  • Micah's Story

    After 15-year-old Micah's chest pain was revealed to be an enlarged heart, surgeons placed a ventricular assist device to save his life — but ultimately Micah needed a transplant to prevent heart failure and return to being a normal, fun-loving teenager.

    Micah
  • Kamari: Overcoming Obstacles

    Born with hypoplastic right heart syndrome, Kamari had his first heart surgery when he was just 3 days old, and in the coming years, he would face more obstacles on the road to a heart transplant.

    Kamari
  • A 'Blue Baby' Returns to The Johns Hopkins Hospital

    Michael Edenburn, 76, was two and a half years old when he underwent the operation that gave birth to modern cardiac surgery and has saved thousands of children’s lives since.

    first blue baby surgery patient
 
US News & World Report: Best Children's Hospitals, Cardiology & Heart Surgery, 2021-22

Nationally Ranked

Named a Best Children’s Hospital 2021–22 by U.S. News & World Report.

 
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