The Comprehensive Marfan Center at Johns Hopkins

The Johns Hopkins
Comprehensive Marfan Center Education


The National Marfan Foundation (NMF) was organized in 1979 as a small organization designed to provide medical information and support for individuals with the Marfan syndrome. Membership in the NMF (both lay and physician) has grown tremendously over the past 20 years. New developments in the management of medical problems related to the Marfan syndrome are presented, both in a monthly publication Connective Issues and at the annual meetings of the National Marfan Foundation.

Further information on Marfan disease may be obtained from the

National Marfan Foundation
382 Main Street
Port Washington, NY 11050

Phone: (800) 8-Marfan or (516) 883-8712
Fax: (516) 883-8040

E-mail: staff@marfan.org
Web site: www.marfan.org