Both pulmonary disease from nontuberculous mycobacteria (NTM) and non-cystic fibrosis bronchiectasis are increasing in the US. Oftentimes, these related medical conditions occur together, however, the natural history, pathogenesis, optimal treatment strategies and the interplay between these diagnoses remain poorly understood. In this study we are developing a database of clinical information and laboratory data from people with a possible or certain diagnosis of NTM or bronchiectasis to better understand these conditions. All clinic patients of the Johns Hopkins Nontuberculous Mycobacteria and Bronchiectasis Center are invited to participate in this voluntary study. If an individual chooses not to participate in this study, this will not affect any aspect of the care that he or she receives at Johns Hopkins.
Team: Keira Cohen, Mark Jennings, Gyanu Lamichhane, Tony Lin, Nikki Parrish, Jonathan Zenilman, Chris Lippincott
Funding: Eudowood Board research support