The faculty and staff of the Huntington's Disease Center at Johns Hopkins welcome you! Our multidisciplinary team works with patients and families to develop a personalized program of medical care. We are honored to have served generations of families with our comprehensive services.
Celebrating Four Decades of Service and Excellence
Huntington's Disease Center at Johns Hopkins celebrates forty years of service! We are also honored to be recognized by the Huntington's Disease Society of America as a Center of Excellence. We are grateful to be acknowledged by patients and families for our committment to providing comprehensive, multidisciplinary care throughout the course of the disease and to discovering best possible care for the future.
Huntington's Disease Center at Johns Hopkins continues to provide outpatient and consultation telehealth services. Video visits allow patients to connect face-to-face in real time without leaving their home. Patients can use a smartphone, tablet or computer. Virtual connections are secure and HIPAA compliant.
Huntington’s Disease Overview: Prevalence, Diagnosis, Disease Management and Research
Jee Bang, neurologist and clinical director of the Huntington’s Disease Center of Excellence, shares an overview of Huntington’s disease. Our center offers multidisciplinary care while vigorously researching mechanisms to slow disease progression and possibly delay or prevent disease onset.
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1872
Huntington's Disease is Discovered
Huntington's disease (HD) is named after George Huntington, who described it among residents of East Hampton, Long Island in 1872.
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1993
Discovery of HD Gene
In 1993, a collaborative group of investigators discovered the gene that causes HD. As a result of this discovery it is now possible to diagnose HD with blood or tissue samples.
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2019
Current Research
The Huntington's Disease Center at Johns Hopkins, as part of a global network of clinicians and researchers, is working on a myriad of approaches to better treat HD.
Studying Neurons of Huntington’s Disease
Dr. Christopher Ross and his lab are studying the complementary approach to treat Huntington’s disease by developing mouse models, which have progressive symptoms that are similar to those of patients.
Contact Us
Johns Hopkins University
600 N. Wolfe Street, Meyer 2-181
Baltimore, MD 21287
For clinical appointments, call 410-955-2398
Fax: 410- 955-8233
Email: [email protected]
For research information:
Susan Robinson, MS
Research Program Manager
410-955-1349
[email protected]
Etta Bernard, MPH
Sr. Research Program Coordinator
410-614-7671
[email protected]
Ritika Miryala, BS
Clinical Research Coordinator
[email protected]
For social work questions:
Anjana Chacko, LCSW-C
410-955-2497
[email protected]