The faculty and staff of the Huntington's Disease Center at Johns Hopkins welcome you! Our multidisciplinary team works with patients and families to develop a personalized program of medical care. We are honored to have served generations of families with our comprehensive services.
Celebrating Four Decades of Service and Excellence
Huntington's Disease Center at Johns Hopkins celebrates forty years of service! We are also honored to be recognized by the Huntington's Disease Society of America as a Center of Excellence. We are grateful to be acknowledged by patients and families for our committment to providing comprehensive, multidisciplinary care throughout the course of the disease and to discovering best possible care for the future.
Huntington's Disease Center at Johns Hopkins continues to provide outpatient and consultation telehealth services. Video visits allow patients to connect face-to-face in real time without leaving their home. Patients can use a smartphone, tablet or computer. Virtual connections are secure and HIPAA compliant.
Timeline of Breakthroughs in Huntington's Disease Research
1872 Huntington's Disease is Discovered
Huntington's disease (HD) is named after George Huntington, who described it among residents of East Hampton, Long Island in 1872.
1993 Discovery of HD Gene
In 1993, a collaborative group of investigators discovered the gene that causes HD. As a result of this discovery it is now possible to diagnose HD with blood or tissue samples.
2019 Current Research
The Huntington's Disease Center at Johns Hopkins, as part of a global network of clinicians and researchers, is working on a myriad of approaches to better treat HD.
Contact Us
Johns Hopkins University
600 N. Wolfe Street, Meyer 2-181
Baltimore, MD 21287
For clinical appointments, call 410-955-2398
Fax: 410- 955-8233
Email: [email protected]
For research information:
Kia Ultz
Research Program Manager
410- 955-1349
[email protected]
For research information:
For research information:
Mollie Jenckes
Research Nurse
410-955-2398
[email protected]