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Johns Hopkins Children’s Center provides palliative care — the comprehensive management of the physical, psychological, social and spiritual needs of children with life-limiting conditions and their families — through the Harriet Lane Compassionate Care program. Our goal is to achieve the best possible quality of life for the child and family, and when death is inevitable, to support the child and family through the dying process and in bereavement. Our services include pain and symptom control, psychosocial and spiritual support, advance care planning and bereavement support.
As the only hospital in Maryland with a pediatric palliative care program, we assist patients from prenatal to young adult in every center and program in the Children’s Center. Our interdisciplinary team, which includes doctors, nurse practitioners, chaplains and a counselor/child life specialist, provides an added layer of support to families as they pursue life-altering treatments and interventions.
Holding Space: Palliative Care in the NICU at Johns Hopkins Children's Center
The expectation and arrival of a new baby is supposed to be a joyful time in a family’s life, but many parents are left reeling when they receive the heartbreaking news that their baby likely won’t live long. Four families share their experiences of loss in Johns Hopkins Children's Center's NICU, and staff speak about the services available through Johns Hopkins’ Perinatal Palliative Care Program to support parents facing the unimaginable: the death of their baby.
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