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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.

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ARVC Patient and Family Seminar

Registration for the 2023 ARVC Patient and Family Seminar is now open!

Please join us for our annual ARVC Patient and Family Seminar to be held IN-PERSON this year at Johns Hopkins on Saturday, April 22, 2023. We are excited to have 2 guest speakers this year: Mario Delmar, M.D., Ph.D. from New York University to share about his basic science research on ARVC and Sam Sears, Ph.D. from East Carolina University to speak on the psychosocial care of patients and families impacted by ARVC. In addition, we'll have members of the Johns Hopkins faculty present on various topics including genetics, management, research, and prospects of gene therapy. The afternoon session will offer discussion groups, Q&A, and research opportunities. Join us Friday evening, April 21st, 2023 for a meet 'n' greet and heavy hors d'oeuvres. This is a great opportunity to meet other attendees and some members of the ARVC Program staff. For additional information, please email Crystal Tichnell at [email protected].

Register Now

View 2023 Seminar Presentations

Watch videos from prior ARVD Family Seminars

2023 ARVC Patient and Family Seminar

Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy ARVC

Heart Failure in ARVC: Symptoms, Treatments and Trajectories

Living with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Living with Arrhythmogenic Right Ventricular Cardiomyopathy ARVC

Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy ARVC

Desmoplakin (DSP) Cardiomyopathy

Desmoplakin DSP Cardiomyopathy

Primer for the Day - The ABC’s of ARVD/C

Primer for the Day  The ABCs of ARVDC

The Johns Hopkins ARVC Program: Then and Now

Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC

Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC

Past ARVD/C Seminars