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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.


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ARVC Patient and Family Seminar

Registration for the 2024 ARVC Patient and Family Seminar is now open!

You and your family members are invited to join us for our annual ARVD/C Seminar! This year the seminar will once again be held in-person, but the scientific presentations will also be livestreamed for those unable to join us in Baltimore. We hope you will consider joining in person to take advantage of the opportunity to meet other individuals and families, participate in research opportunities, and interact with industry, specifically gene therapy companies.

We are thrilled to have two invited guest speakers, Sam Sears, Ph.D., cardiac psychologist, and Andre La Gerche, M.B.B.S., Ph.D., sports cardiologist. In addition, we will have presentations from our own Johns Hopkins faculty; Andreas Barth, M.D., Ph.D.; Nisha Gilotra, M.D.; Oliver Monfredi, M.D.; Cindy James, Ph.D.; and Brittney Murray, M.S. You won’t want to miss this unique opportunity to meet and network with other families affected by ARVD/C and to learn the latest advances in the field. It will be exciting to share the collaborative efforts all around the world in solving the mysteries of ARVD/C.

Make plans to come into Baltimore early to attend a reception at the Hilton Garden Inn Friday evening (7 p.m. -9 p.m.). Heavy hors d’oeuvres will be served. This event is for patients and family members only. No industry representatives please.

Please register early! There is no registration fee for this seminar, but we continue to be mindful of our gathering capacity. You must register to attend.

When: Saturday, April 27th, 2024 8:00 a.m. -5:00 p.m.

Cost: Registration is FREE. You just need to get here!

Who: Patients and Families affected by ARVD/C, Healthcare Professionals

Where: Chevy Chase Conference Center Auditorium
             Main level of Sheikh Zayed Tower
             1800 Orleans Street
             Baltimore, Maryland 21287

Registration: ALL participants must register! It is also helpful to list names of family members that will be attending with you so we can determine appropriate research opportunities. Register online by April 13th.

Register Now Download Event Flyer

View 2023 Seminar Presentations

Watch videos from prior ARVD Family Seminars

2023 ARVC Patient and Family Seminar

Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Heart Failure in ARVC: Symptoms, Treatments and Trajectories

Living with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)

Desmoplakin (DSP) Cardiomyopathy

Primer for the Day - The ABC’s of ARVD/C

The Johns Hopkins ARVC Program: Then and Now

Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC

Past ARVD/C Seminars