Newsletter and Program Events
Quick Navigation
News
The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.
- Read the Latest Newsletter
- ARVC Patient and Family Seminar
- Virtual SADS International Conference
- Seminar 2020 cancelled
- Join the mailing list to be notified of the next available issue
Events
ARVC Patient and Family Seminar
Registration for the 2023 ARVC Patient and Family Seminar is now open!
Please join us for our annual ARVC Patient and Family Seminar to be held IN-PERSON this year at Johns Hopkins on Saturday, April 22, 2023. We are excited to have 2 guest speakers this year: Mario Delmar, M.D., Ph.D. from New York University to share about his basic science research on ARVC and Sam Sears, Ph.D. from East Carolina University to speak on the psychosocial care of patients and families impacted by ARVC. In addition, we'll have members of the Johns Hopkins faculty present on various topics including genetics, management, research, and prospects of gene therapy. The afternoon session will offer discussion groups, Q&A, and research opportunities. Join us Friday evening, April 21st, 2023 for a meet 'n' greet and heavy hors d'oeuvres. This is a great opportunity to meet other attendees and some members of the ARVC Program staff. For additional information, please email Crystal Tichnell at [email protected].
Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Heart Failure in ARVC: Symptoms, Treatments and Trajectories
Living with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Desmoplakin (DSP) Cardiomyopathy
Primer for the Day - The ABC’s of ARVD/C
The Johns Hopkins ARVC Program: Then and Now
Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC
-
- Desmoplakin (DSP), Myocarditis, and ARVC
- Heart Transplant for ARVC
- Improving ARVC Diagnosis Through Machine Learning
- How Big-data Population Genomics Is Improving Our Understanding of the Genetics of ARVC
- A Year in Review
- Updates in ARVC Genetics
- PVC and Follow Up – Why Holter Matters
- 3 Things that COVID Taught Everyone without ARVC
-
- The ‘Rub’ on RV Arrhythmias in Athletes
- Psychosocial Care and the Importance of the Multidisciplinary Clinic
- How Genetic Testing Helps Families with ARVC: Insights from Down Under
- Defibrillators in ARVC: Why we use them and how they work
- Experimental Models of Plakophilin-2 Deficiency: New lessons and future translational perspectives
- Seeking Your Best Possible Self
-
- ABCs of ARVC: An Introduction to Arrhythmias and Cardiomyopathy
- Ablation and Sympathectomy in ARVD/C
- ARVD/C Program Clinical Research Update
- Clinical Drug Trial in ARVC
- Diagnosing and Managing ARVC: What have we learned in 22 years
- Myocardial Inflammation: A Pathologically Prevalent Phenotype in Arrhythmogenic Cardiomyopathy
- The Johns Hopkins Arrhythmogenic Right Ventricular Cardiomyopathy 1st Virtual Mini Session
-
-
-
-
-
-
-
Watch the 2012 presentations online
- Patient Story - Hugh Calkins, MD
- Catheter Ablation of VT in ARVD - Harikrishna Tandri, MD
- The Science of ARVD/C: What We Have Learned - Mario Delmar, MD
- MR Imaging of ARVD/C - Harikrishna Tandri, MD
- Johns Hopkins Research Opportunities - Cindy James, ScM, PhD, CGC
- Healthy Living Workshop: Yoga - Stefanie Toise, Phd, MPH
- An Inquiry into the Efficacy of Yoga in Managing Anxiety and Depression in ARVD Patients - Stefanie Toise, Phd, MPH
- Johns Hopkins Development - Shannon Curley
-
Watch the 2011 presentations online
Jeffrey Saffitz, MD, PhD, Beth Israel Deaconness Medical Center
Lecture: Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of DiseaseSamuel Sears, PhD, East Carolina University
Lecture: The Amazing Race: You and Your Family and ARVD- Epicardial Ablation in ARVD - Harikrishna Tandri, MD
- Genetic Counseling and Testing for ARVD/C - Brittney Murray, MS
- Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of Disease - Jeffrey E. Saffitz, MD, PhD
- The Amazing Race: You and Your Family and ARVD - Samuel F. Sears, PhD
- The Johns Hopkins ARVD Program and Program Overview - Hugh G. Calkins, MD, Crystal Tichnell, MGC
-
Professor Gaetano Theine, Professor of Cardiovascular Pathology, Institute of Pathology, University of Padua, Italy
-
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular Dysplasia and Changes in ARVD/C Diagnostic Criteria -
Richard Hauer, MD, Professor of Cardiology, Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands
Lecture: Addressing ARVD/C in The NetherlandsSamuel Sears, PhD, East Carolina University
Lecture: Psychosocial Challenges for ICD Patients -
William McKenna, MD, Professor of Cardiology, UCL Division of Medicine
Lecture: Genetics and Diagnosis of ARVC -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular DysplasiaSamuel Sears, PhD, Gainesville, Florida
Lecture: Pscyhosocial Challenges for ICD Patients -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Jeffrey A. Towbin, MD, Baylor College of Medicine, Houston, Texas -
Domenico Corrado, MD, PhD, University of Padua, Italy
Lecture: Diagnostic and therapeutic strategies in arrhythmogenic right ventricular cardiomyopathy/dysplasia -
Kathy Hodgkinson, MD, Genetic Counselor, Memorial University
Lecture: The Newfoundland Experience with ARVD -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: How to Better Diagnose and Treat ARVD -
Thomas Winchter MD, FESC, Muenster, Germany
Lecture: What the Patient Should Know about ARVD -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Lecture: You See Only What You Look For and Recognize Only What You Know
Newsletter Archives
- Summer 2022
- Winter 2022
- Summer 2021
- Winter 2021
- Summer 2020
- Winter 2020
- Winter 2019
- Summer 2018
- Winter 2018
- Summer 2017
- Winter 2017
- Winter 2015
- Summer 2015
- Winter 2015
- Summer 2014
- Winter 2014
- Summer 2013
- Winter 2013
- Summer 2012
- Winter 2012
- Winter 2011
- Summer 2011