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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.
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Events

27th Annual ARVC/ACM Patient and Family Seminar
Save the date, April 18th, 2026 for our 27th Annual ARVC/ACM Patient and Family seminar!
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Watch a video featuring all of the presentations here.
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Watch a video featuring all of the presentations here.
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- Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
- Heart Failure in ARVC: Symptoms, Treatments and Trajectories
- Living with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
- Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
- Desmoplakin (DSP) Cardiomyopathy
- Primer for the Day: The ABCs of ARVD/C
- The Johns Hopkins ARVC Program: Then and Now
- Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC
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- Desmoplakin (DSP), Myocarditis, and ARVC
- Heart Transplant for ARVC
- Improving ARVC Diagnosis Through Machine Learning
- How Big-data Population Genomics Is Improving Our Understanding of the Genetics of ARVC
- A Year in Review
- Updates in ARVC Genetics
- PVC and Follow Up – Why Holter Matters
- 3 Things that COVID Taught Everyone without ARVC
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- The ‘Rub’ on RV Arrhythmias in Athletes
- Psychosocial Care and the Importance of the Multidisciplinary Clinic
- How Genetic Testing Helps Families with ARVC: Insights from Down Under
- Defibrillators in ARVC: Why we use them and how they work
- Experimental Models of Plakophilin-2 Deficiency: New lessons and future translational perspectives
- Seeking Your Best Possible Self
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- ABCs of ARVC: An Introduction to Arrhythmias and Cardiomyopathy
- Ablation and Sympathectomy in ARVD/C
- ARVD/C Program Clinical Research Update
- Clinical Drug Trial in ARVC
- Diagnosing and Managing ARVC: What have we learned in 22 years
- Myocardial Inflammation: A Pathologically Prevalent Phenotype in Arrhythmogenic Cardiomyopathy
- The Johns Hopkins Arrhythmogenic Right Ventricular Cardiomyopathy 1st Virtual Mini Session
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Watch the 2012 presentations online
- Patient Story - Hugh Calkins, MD
- Catheter Ablation of VT in ARVD - Harikrishna Tandri, MD
- The Science of ARVD/C: What We Have Learned - Mario Delmar, MD
- MR Imaging of ARVD/C - Harikrishna Tandri, MD
- Johns Hopkins Research Opportunities - Cindy James, ScM, PhD, CGC
- Healthy Living Workshop: Yoga - Stefanie Toise, Phd, MPH
- An Inquiry into the Efficacy of Yoga in Managing Anxiety and Depression in ARVD Patients - Stefanie Toise, Phd, MPH
- Johns Hopkins Development - Shannon Curley
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Watch the 2011 presentations online
Jeffrey Saffitz, MD, PhD, Beth Israel Deaconness Medical Center
Lecture: Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of DiseaseSamuel Sears, PhD, East Carolina University
Lecture: The Amazing Race: You and Your Family and ARVD- Epicardial Ablation in ARVD - Harikrishna Tandri, MD
- Genetic Counseling and Testing for ARVD/C - Brittney Murray, MS
- Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of Disease - Jeffrey E. Saffitz, MD, PhD
- The Amazing Race: You and Your Family and ARVD - Samuel F. Sears, PhD
- The Johns Hopkins ARVD Program and Program Overview - Hugh G. Calkins, MD, Crystal Tichnell, MGC
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Professor Gaetano Theine, Professor of Cardiovascular Pathology, Institute of Pathology, University of Padua, Italy
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Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular Dysplasia and Changes in ARVD/C Diagnostic Criteria -
Richard Hauer, MD, Professor of Cardiology, Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands
Lecture: Addressing ARVD/C in The NetherlandsSamuel Sears, PhD, East Carolina University
Lecture: Psychosocial Challenges for ICD Patients -
William McKenna, MD, Professor of Cardiology, UCL Division of Medicine
Lecture: Genetics and Diagnosis of ARVC -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular DysplasiaSamuel Sears, PhD, Gainesville, Florida
Lecture: Pscyhosocial Challenges for ICD Patients -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Jeffrey A. Towbin, MD, Baylor College of Medicine, Houston, Texas -
Domenico Corrado, MD, PhD, University of Padua, Italy
Lecture: Diagnostic and therapeutic strategies in arrhythmogenic right ventricular cardiomyopathy/dysplasia -
Kathy Hodgkinson, MD, Genetic Counselor, Memorial University
Lecture: The Newfoundland Experience with ARVD -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: How to Better Diagnose and Treat ARVD -
Thomas Winchter MD, FESC, Muenster, Germany
Lecture: What the Patient Should Know about ARVD -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Lecture: You See Only What You Look For and Recognize Only What You Know
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