The Johns Hopkins Adult Congenital Heart Disease Center ensures continuity of care for congenital heart disease patients as they enter adulthood and throughout the rest of their lives.
Our specialized clinics provide care throughout various stages of adulthood. You may require care from an adult congenital heart disease specialist if you have congenital heart disease and:
- Become pregnant
- Had surgical heart repairs during childhood that have deteriorated over time
- Develop acquired heart disease, such as coronary artery disease, as you age
- Develop pulmonary hypertension
Learn MoreOverview of Adult Congenital Heart Disease
Congenital heart disease is the most common birth defect in the United States. Patients diagnosed with congenital heart diseases may transition into adulthood with unique complications that require monitoring and treatment. Surgical repairs that deteriorate over time, abnormal heart rhythms, pulmonary hypertension and heart failure are some complications that adults with congenital heart disease may experience.
Patients with congenital heart disease who are pregnant require monitoring and continuing care.
Living with Adult Congenital Heart Disease (ACHD)
During this live webinar, Johns Hopkins specialty trained cardiologists Drs. Ari Cedars and Stacy Fisher discussed the specialized, lifelong care required for ACHD. Learn about available treatment and management options, as well as the continuing tradition of groundbreaking care for congenital heart disease at Johns Hopkins.
Why Choose Johns Hopkins for Adult Congenital Heart Disease Care
Our center is one of the few in the region that specializes in adult congenital heart disease. Learn what makes our center unique.
Our multidisciplinary team of congenital cardiologists, cardio-obstetric specialists, cardiovascular surgeons and therapists provide comprehensive care, often all scheduled the same day for your convenience.
Johns Hopkins experts are actively engaged in cutting-edge research. You benefit from breakthrough advancements in treatments informed by our research.
We work with you to develop a personalized treatment plan, ensuring you get the most out of life by reducing the number of hospital admissions and managing your adult congenital heart disease based on your experiences.
In the midst of the COVID-19 pandemic the heart valve that was placed 29 years ago to correct my tetralogy of Fallot, failed. This team has made it so I can continue caring for the 6 children I was fortunate to be able to bring into this world.
- Lela White,
Underwent pulmonary valve replacement at Johns Hopkins.
The Johns Hopkins care team was fantastic! I’d like to give some credit to the nurses and the entire team. I felt comfortable with the people around me.
- Levi Silva (center),
Underwent surgery to treat transposition of the great arteries at Johns Hopkins.
This surgery has shown me that I can literally do anything and I am stronger than I ever thought I was. I am forever grateful for everyone at Johns Hopkins who played a part in my surgery. My heart is forever thankful."
- Aubrey Roach (left),
Underwent heart valve replacement surgery to treat several congenital heart diseases.
Congenital Heart Disease Research
Our physicians and scientists are dedicated to improving the health and quality of life for patients diagnosed with congenital heart disease. We collaborate with researchers at The Johns Hopkins Blalock-Taussig-Thomas Pediatric and Congenital Heart Center. Learn more about our patient-centered research.
Patient EducationInnovations in Adult Congenital Heart Disease
Cardiologist Stacy Fisher has been caring for complex patients for more than 20 years. But it wasn’t until she joined the Johns Hopkins Medicine Heart and Vascular Institute last July that she felt part of a multidisciplinary team that provides extraordinarily personalized care for adult patients with unique anatomies.
Learn more about our three clinics that serve adults diagnosed with congenital heart diseases (ACHD).
ACHD Heart Failure and Heart Transplant Clinic
Heart failure is common in patients diagnosed with adult congenital heart disease and requires specialized care. Our clinic assesses patients diagnosed with congenital heart disease and heart failure for heart transplant eligibility and care.
Specialized Collaboration to Treat Congenital Heart Disease
Our program collaborates with the Cardiovascular Surgery ICU (CVSICU) and cardiac anesthesiologists to evaluate patients with congenital heart disease and determine the best care plan before, during and after surgery to improve patient outcomes.
Prior to surgery, our multidisciplinary team collaborates to create the best treatment plan for each patient and then the most effective surgical approach.
Based on your age, you will be cared for by specialized anesthesiologists, including pediatric cardiac anesthesiologists or providers trained in anesthesia for adult congenital heart disease. We will collaborate with your primary care provider, cardiologist, and other health care provider to ensure you will receive the highest quality of care.
Locations for Care
The Charlotte R. Bloomberg Children's Center Building
The Pediatric and Congenital Heart Center
1800 Orleans St., M2201
Baltimore, MD 21287
Green Spring Station
10755 Falls Road, Pavilion
Lutherville, MD 21093
Johns Hopkins Cardiology - Columbia
5450 Knoll North Dr.
Columbia, MD 21045
Johns Hopkins Health Care & Surgery Center, Bethesda
6420 Rockledge Dr.
Bethesda, MD 20817
Remote Access to CareTelemedicine Cardiology Services
Our clinic provides telemedicine services for adults diagnosed with congenital heart diseases which can help you manage your condition with more ease and flexibility.
This service can help young adults who may be away from home attending college or if you who don’t have immediate access to adult congenital heart disease specialists.
Contact us at 443-997-5437 to request an appointment.
Lifetime of CarePediatric and Congenital Heart Center
Congenital heart disease affects almost 1 in every 100 newborns in the United States . The Johns Hopkins Pediatric and Congenital Heart Center is dedicated to provide comprehensive care for children diagnosed with a congenital heart disease. The pediatric center works together with adult specialists to transition young adults to specialized adult congenital heart disease experts for care.