Lymphoblastic Leukemia: Willow's Story
Patient Story Highlights
- Willow was diagnosed with pre-b cell acute lymphoblastic leukemia (pre B-ALL).
- For girls with pre B-ALL, treatment takes about 2½ years. The cure rate exceeds 90%.
- Johns Hopkins all Children's Child Life Specialists are here to support you and your child through their treatment and recovery.
It was just one year ago when little Willow celebrated her third birthday, but not where she or her family expected. Newly diagnosed with pre-b cell acute lymphoblastic leukemia (pre B-ALL), Willow was surrounded by Child Life specialists and nurses who threw her a Frozen-themed party at Johns Hopkins All Children’s Hospital. It all fell on the weekend when Hurricane Irma was set to make landfall in Tampa Bay. The precious, yet emotional, moment was caught on camera and the video went viral, touching hearts across the country.
“It is still so incredibly emotional to watch,” says Willow’s mom, Jennifer. “It’s hard to bring myself back to that time in my life. She’s come really far.”
She has come so far that Willow is now in the maintenance part of her treatment, which means she takes chemotherapy daily from home and has fewer appointments. But she has been through a lot: three major surgeries, more than a dozen blood transfusions, and 14 lumbar punctures.
“We’ve spent a lot of time on 7 South [the cancer unit] and we love and trust all of our doctors,” Jennifer says. “The nurses were also really great. Even when Willow wasn’t into interacting or talking much, they still came in with smiles on their faces and were always super patient with her.”
Now, 12 months later, Willow is not only doing great, but coming up on another birthday.
“She will be 4 and it will be one year since her diagnosis, which is also a pretty big milestone,” Jennifer says. “I’m so excited, we’re going to have to do something big. I think we are going to get a princess and rent a big blow-up waterslide.”
For girls with pre B-ALL, treatment takes about 2½ years. The cure rate exceeds 90%.
Willow will officially complete treatment on Nov. 17, 2019 and will ring the symbolic bell signifying and celebrating the end of treatment soon after that.
“We are really grateful for how well she is doing,” Jennifer says. “We know she’s going to beat this, and she’s going to be fine.”
But for now, it’s time for another special birthday celebration–a princess party awaits!
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Having a child diagnosed with leukemia is an overwhelming moment for a family. At Johns Hopkins All Children’s Cancer & Blood Disorders Institute in St. Petersburg, Florida, our team helps you navigate this new world as smoothly as possible.