Brain Tumor Patient Stories

Esthesioneuroblastoma (Olfactory Neuroblastoma) | Angie’s Story

Johns Hopkins head and neck cancer surgeon Nyall London and neurosurgeon Gary Gallia worked together to endoscopically remove patient Angie’s esthesioneuroblastoma. Angie credits the combination of surgery and proton therapy she received at Johns Hopkins with leaving her free of disease.

Glioblastoma and BRAF Gene Mutation | Courtney’s Story

After being diagnosed with a glioblastoma brain tumor in 2008, Courtney’s prognosis was not good. A referral to neuro-oncologist Karisa Schreck and neurosurgeon Jon Weingart changed the course of her illness. They identified the tumor as having a specific mutation in the BRAF gene, and they used a combination of surgery, conventional chemoradiation and targeted therapy to reduce its size and then keep the cancer in remission.

Brain Tumor Treatment | Advances Over 10 Years: Carlos’ Story

As Carlos faced the large regrowth of his malignant brain tumor over the 10 years post-surgery, his team at the Johns Hopkins Comprehensive Brain Tumor Center was working on advancing brain tumor treatments. Watch to learn more about how Carlos’ physician-scientists were able to recommend a clinical trial using a recent discovery to help shrink his tumor.

Glioma Brain Tumor | Dave’s Story

Dave, a pilot and a barefoot water-skier, chose Johns Hopkins when he was diagnosed with a low-grade glioma brain tumor. Learn how neurosurgeon Jon Weingart removed the tumor from the language area of Dave’s brain while Dave was awake.

Pituitary Tumor | Yanir's Story

Yanir shares the story of his diagnosis with a rare thyroid-stimulating, hormone-secreting pituitary tumor that required immediate brain surgery to save his sight and life.

Pediatric Brain Tumor | Declan's Story

Five-year-old Declan had an MRI to monitor a growth hormone deficiency. Afterward, his parents got shocking news: The scan showed Declan had a large craniopharyngioma brain tumor.

Convexity Meningioma | Jill's Story

Hollywood stunt woman, Jill Brown, was diagnosed with a benign convexity meningioma brain tumor and searched for the right doctor and medical team across the country. Watch as she recounts what led her to travel across the country to have her surgery performed at The Johns Hopkins Hospital.

Meningioma Brain Tumor | Pat's Story

The changes in her gait, balance and mood were subtle, but Pat noticed them and sought help. An MRI revealed she had an enormous meningioma brain tumor that had been growing for years. Johns Hopkins neurosurgeon Dr. Jon Weingart performed the surgery that changed Pat’s life.

Transnasal Endoscopic Surgery | Sofia's Story

Diagnosed with an inoperable malignant skull base tumor, Sofia, a Connecticut teenager, came to Johns Hopkins and had her tumor removed with a transnasal endoscopic approach by Johns Hopkins skull base neurosurgeon, Dr. Gary Gallia and otolaryngologist, Dr. Masaru Ishii.

Juvenile Nasopharyngeal Angiofibroma | Javier's Story

Javier and his family share their experience at Johns Hopkins Medicine, after seeking treatment following a diagnosis of a Juvenile Nasopharyngeal Angiofibroma (JNA) tumor.

Brain Tumor | Carlos Luceno's Story

Diagnosed with a grade II astrocytoma brain tumor, Carlos Luceno is currently living with brain cancer. Carlos is receiving his treatment and care from Dr Henry Brem.

Complex Brain Tumor | Glenn's Story

After surgery to remove a massive brain tumor, violinist Glenn had a long road ahead of him. His wife, Jan, also a violinist, knew that music would play a crucial role in his continued recovery, so she and Glenn planned a performance to work toward. One year later, they returned to thank Dr. Henry Brem and the staff who cared for Glenn.

Discovering a Meningioma by Accident | Peter’s Story

When Peter fell down stairs and hit his head, he didn’t expect it to save his life. An imaging study revealed a skull base meningioma — a benign tumor of the covering of the brain. He sought care from neurosurgeon Raj Mukherjee, M.D., M.P.H., who performed a minimally invasive craniotomy and removed the tumor.