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Patient information

Find a Rasmussen Syndrome support group near you:

RE Children’s Project
The RE Children's Project is a nonprofit organization that funds collaborative research projects focused on Rasmussen syndrome among several research institutions. The Johns Hopkins Center for Pediatric Rasmussen Syndrome is an active member of this consortium and is committed to maintaining a leadership role to find better medical treatments and an eventual cure for Rasmussen Syndrome.

Hemispherectomy Foundation
The Hemispherectomy Foundation is a nonprofit organization that was founded to provide emotional, financial, and educational support to individuals and their families who have undergone, or will undergo, a hemispherectomy or similar brain surgery.

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Maryland Patients

To request an appointment or refer a patient, please contact the Johns Hopkins Center for Rasmussen Syndrome  at 410-955-9100.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337


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Whether you're crossing the country or the globe, we make it easy to access world-class care at Johns Hopkins.

Outside of Maryland (toll free)

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International Patients

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