Patient Information

Preparing for Your First Appointment

Please fill out the following forms as appropriate and bring them with you to your appointment.

Records We Will Need

Please send your medical records, MRI and/or CT scans and EEGs in advance of your visit. Whenever possible, we would like to see the actual images from previous MRIs and/or CT scans and the actual EEG recordings from previous recordings, not just the reports. It is particularly important that we review scans or EEG recordings that have been found to show an abnormality.​

Please bring names, addresses and phone numbers of all health care professionals who should receive letters about our findings and suggestions.

What to Expect

You should expect to spend anywhere from one to six hours or more at the Johns Hopkins Outpatient Center. Our group works as a team to provide your care. You will see an epileptologist (a neurologist who specializes in the treatment of epilepsy) as well as other professionals participating in your evaluation and treatment.

Many patients require laboratory work to check anticonvulsant medication levels, in addition to other diagnostic tests. 

Support Groups

Support groups can help provide more information on epilepsy, new directions in research, and practical tips on living with the condition.

Carson Harris Foundation
The family of one of Dr. Kossoff’s first patients to be treated with the ketogenic diet has set up a website for their foundation. Their mission is to increase awareness on the issues that affect individuals with epilepsy and raise funds in support of clinical and research efforts.

Epilepsy Foundation of America
The Epilepsy Foundation ensures people with seizures can participate in all life experiences and seeks to prevent, control and treat epilepsy through research, education, advocacy and services.

Epilepsy Foundation of the Chesapeake Region
The Epilepsy Foundation of the Chesapeake Region (EFCR) works with Abilities Network to serve the entire Baltimore/Washington/Northern Virginia area, helping everyone to better understand and live with epilepsy. EFCR provides information and referrals, education, advocacy, assistance with medical issues, support groups, scholarships and provider agencies.