Patients are evaluated by a Johns Hopkins neurologist in the Johns Hopkins Outpatient Center. These physicians are specially trained in neuromuscular diseases and disorders closely related to ALS.
Once diagnosis is confirmed by a neurologist, the ALS care team led by Lora L. Clawson, MSN, CRNP creates a care plan after a thorough assessment of your care needs by all team members. This plan may include a wide range of therapies and clinical services. The ALS Clinic collaborates with other teams across Johns Hopkins in areas of physical and occupational therapy, nutrition, speech and swallowing, as well as respiratory evaluations to offer you well-rounded care.
Our team also provides education on all aspects of ALS, including treatment options, our multi-specialty approach, neurological assessment, eligibility for clinical trials, and a personalized treatment plan. We offer knowledge and empowerment to help you and your family make the many necessary medical decisions during the course of the disease.