Patients with amyotrophic lateral sclerosis (ALS) face unique challenges that are best addressed by a multi-specialty clinic. With a diverse range of expertise, the Center for ALS Specialty Care helps patients and families navigate the various aspects of this difficult disease.
Multi-Specialty ALS Care
Studies show that care in a multi-specialty ALS clinic improves both longevity and quality of life. Each of our team members offers unique expertise to guide patients through this disease.
Our neurologists optimize nerve health with targeted therapies and cutting-edge clinical trial opportunities.
Our pulmonologists have dedicated ALS expertise to maximize patients’ lung function.
Our speech-language pathologists use strategies to promote swallowing function and maintain communication.
Our physical therapists promote mobility and safety with ALS-specific interventions.
Our occupational therapists help patients navigate activities of daily living by anticipating future needs.
Our neuropalliative care specialists focus on improving and protecting patients’ quality of life.
What to Expect
For ALS patients and families, traveling to multiple appointments can be difficult. Our center brings different specialists together under one roof to streamline care into a single day.
During your visit, you will meet with our team of ALS experts, with back-to-back appointments tailored to your needs.
Convenient ALS Care
"With telemedicine, Dr. Maragakis can have a presence in my home without me physically having to go to see him. That's a huge energy savings, especially for a patient with ALS." - David, a patient of the Center for ALS Specialty Care. Hear from David and learn more about telemedicine.
Our ALS Care Team
JinAe Arneklev, M.S.N., C.R.N.P.
Palliative Care Physician
Hannah Smith, PT, DPT, NCS
Michelle Gosnell, OTR/L
Senior Research Program Manager
Research Program Coordinator
Kimberly Street, LMSW, LPN, CCM
ALS Association Care Service Coordinator
Lexi Tutor, MS, CCC-SLP
ALS Association Assistive Technology Specialist
About Our Center
The Center for ALS Specialty Care is sponsored by the ALS Association, a nonprofit organization that supports ALS research, services and programs around the world.
ALS Clinical Trials Unit
Our team leads numerous ALS research projects, giving patients the opportunity to participate in clinical trials. Johns Hopkins is a recognized leader in ALS research: almost all the major therapeutic approaches toward ALS have been carried out, or initiated, at Johns Hopkins.