Pacing for Parkinson's
About Pacing for Parkinson's
Pacing for Parkinson's (P4P) is a volunteer-led community that raises awareness of and funds for Parkinson’s disease research, education, outreach programs, and patient care at Johns Hopkins. P4P seeks to be inclusive and accessible to anyone affected by Parkinson’s disease, regardless of ability level.
Pacing for Parkinson's started in 2008 and the story of P4P continues today. We are constantly working to grow our community and hope you consider participating this year.
Join Pacing for Parkinson’s
Registration is now open for 2023! You can view existing teams, create an individual or team page, and donate to the cause by clicking the button below. If you have any questions, please contact [email protected].
Where does the money go?
All funds we raise go to support the research, education/outreach and clinical efforts of Johns Hopkins Medicine. There is no exact formula for allotting funds to each category – it all depends on the requests made of the PDMD Center from community partners as well as the promising research and patient care projects that emerge. The decisions are made by the PDMD Center care team as a group and are focused on projects that are sustainable and have the potential to improve the lives of those with PD and their care partners. In a typical year:
- 80% of funds are directed to these initiatives within the Johns Hopkins PDMD center.
- 20% is earmarked to support broader patient care, education and discovery initiatives, like basic science research that is central to the advancement of knowledge in all disciplines of medicine, the training of the next generation of care providers and researchers, and ensuring facilities are comfortable for patients and their families.
Programs Funded in 2023
For 2023, we're happy to share the following PDMD Center grant awardee highlights, supported by funds from Pacing for Parkinson's:
This program offers couples living with Parkinson’s a way to improve communication and collaborate on partnering for activities of daily living. They will learn to negotiate a turn, a shift of weight, or an assist, in simple strategic ways that give the People with Parkinson's (PWP) agency to make decisions and protect the care partner from muscle strain and injury. Rather than only working with the PWP or the care partner, the program aligns the two in a symbiotic structure so that each can help the other.
Our current program now offers 6 live classes per week for people with Parkinson's, addressing multiple levels of physical and mental abilities, and 2 Zoom classes per week to reach those not able to attend classes in the gym. No person with PD is ever turned away and classes continue to be free of charge for PWP (including the initial evaluation to place person in the appropriate classes to best benefit them).
The Edward A. Myerberg Center plans to create a new program for people with Parkinson’s. The plan is for the person with Parkinson’s and their care-partner to take turns on the cycle and then do a circuit workout on a chair that will be next to the bike (1 person pedaling and 1 person doing chair workout and then switching). This class will be offered twice a week.
Aquatic therapy refers to any exercise or therapy that is conducted in a controlled and monitored water environment. For example, aquatic exercise inside a pool, usually a heated pool, can involve exercise to improve fitness levels. The American Parkinson Disease Association has recommended aquatic therapy as a good option for Parkinson’s patients. People with Parkinson’s disease who exercise regularly move and maintain balance better than those who do not. Water boasts unique properties that enable it to be used for both therapy and fitness, especially for persons who cannot comfortably move on land, as is often the case for people with Parkinson’s.
Meet the Committee
We are grateful to the following volunteers, without whom Pacing for Parkinson’s would not be possible.
- Nicole Nicholson, co-chair
- Aliya Reich, co-chair
- Greg Dreibelbis
- Jennifer Eklof
- Kathy Hobart
- James Morissette
- Alan Penn
- Mykaela Trees