Our vision is to fully harness all available clinical and patient-derived information to deliver safe, beneficial, and cost-effective treatment tailored to every individual with cystic fibrosis (CF). We believe that a data-driven, precision medicine approach to care will lead to improved understanding of each patient’s disease trajectory and allow for earlier detection and treatment of disease complications, resulting in improved quality of life and long-term prognosis for our cystic fibrosis population.
The mission of the Johns Hopkins Cystic Fibrosis Center is to provide outstanding, individualized holistic care to each and every cystic fibrosis patient, while seeking to expand our understanding of the disease at the individual level. Our research combines traditional basic science techniques with genetic information, big data, and remote monitoring to gain insights that can be efficiently incorporated into clinical practice for optimization of patient care.
Questions we're asking that inform us on how to best care for patients include:
How can we optimize outcomes for individuals treated with CFTR modulators while anticipating potential side effects?
How can we personalize detection and treatment of diabetes for high-risk CF patients?
The Johns Hopkins Cystic Fibrosis Center conducts single site, investigator-initiated basic science and clinical research and participates in national, multi-center CF trials. Use the drop down below for more information about our current studies.
The Johns Hopkins Cystic Fibrosis Center routinely cares for approximately 600 pediatric and adult CF patients. Learn more about our cystic fibrosis patient care.