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Encephalitis Support Groups and Resources

Johns Hopkins Resources

What is encephalitis?
Comprehensive information about this condition, causes, symptoms and treatment.

The Department of Medical/Surgical Social Work
The department provides quality support services to patients and families through expert assessment and counseling.

The Department of Spiritual Care and Chaplaincy
The department is available seven days a week, 24 hours a day. Any patient, family member or visitor may request to speak with a chaplain, and any staff member can make a referral to the pastoral care team. 

 

Other Organizations

These organizations can provide information and education on encephalitis:

Encephalitis Global
A USA non-profit organization sharing information and support with people affected by encephalitis.

The Encephalitis Society - UK
The organization’s stated aim is to improve the quality of life of all people affected directly and indirectly by encephalitis.

Autoimmune Encephalitis Alliance
The alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.

Encephalitis411.org
This organization seeks to improve the quality of life for those impacted by encephalitis thought research, awareness and advocacy. 

The Hashimoto’s Encephalopathy SREAT Alliance
This nonprofit organization formed in 2012 to collect, archive, and share information about Hashimoto’s encephalitis/encephalopathy.

The Anti-NMDA Receptor Encephalitis Foundation, Inc. - Canada
This nonprofit foundation promotes awareness, provides support and raises funds for research committed to understanding and ending encephalitis and related diseases.

The International Autoimmune Encephalitis Society
This is a family/patient-centered organization that assists members from getting a diagnosis to recovery and the many challenges experienced throughout that journey.

NMDA Antibodies Facebook Support Group - USA

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