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Patient Information

About our Practice

The Johns Hopkins HHT Center of Excellence clinics are located throughout the Johns Hopkins medical campus. Our doctors are board-certified and full-time faculty at the Johns Hopkins University School of Medicine with partner expertise in the clinical care for adults and children with HHT.

The Johns Hopkins HHT Center of Excellence is one of the pioneering treatment centers in North America that help to provide comprehensive coordination of care necessary for treating patients with HHT.

Request an Appointment

Request an appointment by speaking to our medical concierge at 410-464-6555. If you are a new patient, please remember that all medical records must be received before an appointment can be scheduled. Please complete the New Patient Questionnaire and MRI Pre-Screening Form:

  • Complete the New Patient Questionnaire (save a print copy for your records)
  • Complete the MRI Pre-Screening Form.
  • Fax notes from your referring physician, otolaryngology physician, or primary care physician along with any diagnostic test results

Mail or fax paperwork to:

Dr. Clifford R. Weiss
Director of the Johns Hopkins HHT Center of Excellence
Interventional Radiology Center
Bloomberg 3287
1800 Orleans Street
Baltimore, MD 21287

Fax: 410-367-2325

Outside images can be shared electronically in AMBRA. There is a charge for archiving and reading all images uploaded into the Johns Hopkins radiology system from outside radiology facilities, our team cannot review your images without having them uploaded and read at Johns Hopkins, for questions about this billing call 410-735-6740.

Online Patient Health Records (MyChart)

MyChart is a secure website that provides the most up-to-date medical information available to you about your Johns Hopkins care and connects you to your health care team. MyChart is available in English and Spanish. Please call the MyChart help desk at 855-389-6928 to obtain an access code and instructions about how to use this helpful service.

Insurance Information

Prior to Scheduling

Please contact your insurance company to let them know you would like to have an HHT evaluation at Johns Hopkins. The following information may be needed:

Dr. Clifford R. Weiss, Director of the Johns Hopkins HHT Center of Excellence
Interventional Radiology Center
Bloomberg 3287
1800 Orleans Street
Baltimore, MD 21287
Fax: 410-367-2325
Phone: 410-502-3628 — Gina M. Robinson, MSN, RN/HHT program coordinator
*referring physician information- the doctor that advised you be seen here for HHT.

Insurance Questions

Please contact the Office of Managed Care/Insurance or call 410-424-4818.

  • Although our HHT team providers/physicians work together to care for our HHT patients, each provider/physician may or may not be covered by your insurance. Prior to your visit, verify coverage for each provider/physician and any recommended diagnostic testing
  • There is a charge for archiving and reading on all images uploaded into the Johns Hopkins radiology system from outside radiology facilities. Our team cannot review your images without having them uploaded and read at Johns Hopkins. For questions about this billing call 410-735-6740.
  • Unfortunately, if you do not have the appropriate referrals or pre-authorization for testing, your clinic appointment or test may be canceled. Please double check this before arriving for your appointments.
  • Johns Hopkins does not accept out-of-state medicaid.

Frequently Asked Questions

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