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Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) and Complex Arrhythmias

Precision Medicine Center For Excellence for Arryhythmogenic Right Ventricular Cardiomyopathy (ARVC) and Complex Arrhythmias

 
Do you,
or a loved one,
have ARVC?
We offer treatments, research,
and a supportive community.

Using Precision Medicine to Treat ARVC

Welcome! We’re here to help you and your family navigate through the diagnosis and treatment options for arrhythmogenic right ventricular cardiomyopathy (ARVC). While the disease risks are severe, preventive care and disease management allow you to maintain what’s important: a full and active lifestyle. We’re leading the way in ARVC research and education, which we hope will directly benefit patients and their loved ones.

The Importance of Getting Tested

When someone is diagnosed with ARVC, it is important for everyone in the family to get tested. ARVC diagnosis involves many individualized tests and criteria. Most of these detect genes you inherit from your family, but many environmental factors also shape your risk for developing ARVC. Putting all of these pieces together in a unique finished puzzle is precision medicine. 

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Learn more about Johns Hopkins Arrhythmogenic Right Ventricular Dysplasia (Cardiomyopathy) Program.

At the Heart of Precision Medicine

Jasonee was diagnosed with ARVC in 2012. After a sudden cardiac event, a series of doctors in her hometown struggled to make a diagnosis. She found experts at Johns Hopkins, who determined her condition was a rare familial disorder that causes sudden cardiac death in young, apparently healthy people. Now receiving proper treatment, Jasonee feels reassured that this condition is manageable, allowing her to live a full life.