Johns Hopkins at the North American Cystic Fibrosis Conference
The North American Cystic Fibrosis Conference brings together scientists, clinicians, and caregivers from around the world to learn about and discuss the latest pediatric CF research. Several faculty members of Johns Hopkins Children's Center presented their research.
2026 Schedule of Presentations
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Time: 1:00 - 5:00 PM EDT
Session: Integrating Quality Improvement Framework to Enhance Clinical Care
Chair and Speaker: Lauren Mitchell, PT
Location: Building B, Room 218
Time: 3:00 - 5:00 PM EDT
Session: Making PEP a Habit: Every Patient, Every Time
Presenter: Jonathan J. Grant, PharmD, BCACP
Location: Building B, Room 207-208
Time: 3:00 - 5:00 PM EDT
Session: Making PEP a Habit: Every Patient, Every Time
Presenter: Karen VonBerg, PT, DPT
Location: Building B, Room 207-208
Time: 3:00 PM - 5:00 PM EDT
Session: Building the CF Therapy Toolbox
Presenter: Holly L. Loosen, PT
Location: Building A, Room 410
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Time: 1:00-2:00 PM EDT
Session: Writer’s Workshop for Impactful Quality Improvement Abstracts & Manuscripts
Facilitator: Lauren Mitchell
Location: Building B, Halls 1 & 2
Time: 12:30-2:00 PM EDT
Session: Genetics for the Busy CF Clinician: From Test Results to Care Plan
Presenter: Karen Raraigh, MGC
Location: Building B, Room 218
Time: 4:30 - 6:30 PM EDT
Presentation: Reputation for Resilience: Physical Therapy & Movement Across the CF Eras
Presenter: Karen VonBerg, PT, DPT
Location: Building B, Room 313-314
Time: 4:30 - 6:30 PM EDT
Presentation: Blank Space: Writing the Next Chapter in Behavioral and Lifestyle Strategies to Promote Healthy Aging with CF
Presenter: Kristin Riekert, PhD
Location: Building B, Room 313-314 -
Time: 7:45 - 9:45 AM EDT
Session: Noteworthy CF Research Relevant to Genetic Counseling Care
Presenter: Audrey Pion
Location: Building B, Room 217
Time: 9:00 AM - 9:50 AM EDT
Presentation: NMD Inhibition Unlocks Readthrough-Free Modulator Rescue of Nonsense Variants in CFTR at TM12-NBD2: A G551D-Like Precision Path
Presenter: Neeraj Sharma, DVM PHD
Location: Building B, Halls 1 & 2 - Theater A
Time: 1:30 - 2:20 PM EDT
Session: A Conversation with Scott Blackman & Jay Freeman
Presenter: Scott Blackman, MD, PhD
Location: Building B, Halls 1 & 2 - Fireside Chat B
Time: 10:15 - 12:15 PM EDT
Session: Hormones in Motion: Best Abstracts in CF Endocrinology
Presenter: Samar Atteih, MBBChBAO
Location: Building B, Room 312
Time: 10:15 - 11:45 AM EDT
Presentation: Standardization of Vitamin D Screening With Treatment Leads to Improved 25(OH)D in Pediatric Cystic Fibrosis Patients
Presenter: Deanna Green, M.D., M.H.S.
Location: Building B, Halls 1 & 2 - Theater A
Time: 10:15 - 12:15 PM EDT
Presentation: Improving Rate of Multi-Disciplinary CF Visits for People With CF Post-Lung Transplantation Through Quality Improvement Methodology
Presenter: Lauren Mitchell, PT
Location: Building B, Room 302-305
Time: 2:30 - 4:30 PM EDT
Presentation: The Role of Genetic Modifiers in CF Gene Mutation Expression – Why Do People With the Same Mutations Present So Different?
Presenter: Karen Raraigh, MGC
Location: Building B, Room 306
Time: 2:30 - 4:30 PM EDT
Presentation: Listening for What Matters: Staying Curious in Every Conversation
Presenter: Karen VonBerg, PT, DPT
Location: Building B, Room 206 -
Time: 7:45 AM - 9:45 AM EDT
Session: Navigating Uncertainty: Implementing Nutrition Care Across Complex Nutrition Contexts
Chair: Amanda Leonard, MPH, RD, LD, CDE
Location: Building B, Room 310
Time: 8:00 - 9:15 AM EDT
Session: From Malnutrition to Metabolic Disease: Complexities of Weight Management in Modern CF Care
Chair: Megan Childers, LCSW-C
Location: Building A, Room 402-403
Time: 8:00 - 9:15 AM EDT
Presentation: Complex Pediatric Patient with Cystic Fibrosis: Oncology
Presenter: Sean Elliott, PT
Location: Building A, Room 406-407
Time: 8:00 - 9:15 AM EDT
Presentation: Recurrent Pulmonary Exacerbations with Progressive Incomplete FEV1 Recovery in Pediatrics with Cystic Fibrosis
Presenter: Michelle Marshall, R.R.T.
Location: Building A, Room 406-407
Time: 10:15 AM - 12:15 PM EDT
Session: State-of-the-Art Genome Editing
Chair: Greg Newby, PhD
Location: Building B, Room 211-212
Time: 1:00-2:00 PM EDT
Session: “Go Beyond the Limit!” Navigating Copay Maximizer Plans
Facilitator: Tynesia Smith
Location: Building B, Halls 1 & 2
Time: 8:30 - 10:00 AM EDT
Presentation: The Effect of Highly Effective Modulator Therapy on Incidence of Viral Infections in Pulmonary Exacerbations in Cystic Fibrosis
Presenter: Karoline Sevier
Location: Building B, Halls 1 & 2 - Theater A
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607 Risk factors for fracture in people with CF [C. Wang, S. Harrison, P. Mogayzel, N. Lechtzin, S. Blackman, J. Crane, M. Wu]
608 Genetics beyond CFTR contribute to developing CF-related bone disease [M. Wu, P. Duggal, J. Crane, S. Blackman]
613 Effect of CFTR modulator therapy on the risk of CF-related diabetes [S. Atteih, K. Raraigh, M. Wu, J. Collaco, S. Blackman]
627 Diabetes distress among individuals with CF-related diabetes: A pilot study [M. Del Valle Rolon, C. Edeh, M. Wu, S. Blackman] (Maite just finished her fellowship with us, now faculty at St Christophers in Philadelphia)
629 Genetic modifiers of glucose metabolism in cystic fibrosis [C. Edeh, M. Porter, R. Hutson, S. Blackman]
630 CForwaRD: Comparison of abnormalities detected by glucose tolerance test and continuous glucose monitoring [C. Edeh, D. Hodge, M. Del Valle Rolon, M. Wu, D. Green, S. Blackman]
2023 Video Presentations
Changing Landscape of Cystic Fibrosis Care
Research Overview for CF-Related Diabetes Prediction Model
Cystic Fibrosis-Related Bone Disease
Health of Women with Cystic Fibrosis
Cystic Fibrosis-Related Diabetes Research Overview
