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Additional Resources

Organizations

American Cancer Society
Toll-free: 1-800-ACS-2345 (1-800-227-3345)

The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service. The American Cancer Society website contains information about many of the challenges of cancer and survivorship. You can search for information by cancer type or by topic. ACS provides a list of support groups in your area or you can join online groups and message boards.

National Cancer Institute (NCI)
Toll-free: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615

The National Cancer Institute provides accurate, up-to-date information on many types of cancer and the challenges cancer can bring. You can also use the site to search for information by cancer type or topic, and you can access information about treatment-related issues. Information about financial and insurance matters is also included. You can learn how clinical trials work and search for a clinical trial in your area. This site has a detailed dictionary of cancer terms.

Johns Hopkins Support for People with Oral and Head and Neck Cancer (JH SPOHNC)

SPOHNC is a patient-directed, self-help organization dedicated to meeting the needs of oral and head and neck cancer patients. SPOHNC, founded in 1991 by an oral cancer survivor, addresses the broad emotional, physical and humanistic needs of this population. SPHONC provides a list of support groups in your area.

The Head and Neck Cancer Alliance
Toll–free: 843.792.6624

Head and Neck Cancer Alliance provides support to head and neck cancer patients throughout the year; educate children and adults in the disease process, treatment, and prevention of head and neck cancer; and support ongoing research in head and neck oncology.

CancerCare, Inc.
Toll-free: 1-800-813-HOPE (1-800-813-4673)

CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge.

International Association of Laryngectomees (IAL)
The International Association of Laryngectomees (IAL) is a non-profit voluntary organization composed of approximately 250 member clubs and recognized regional organizations. These clubs are generally known as “Lost Chord” or “New Voice” clubs comprised of from 10 to more than 300 Laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts towards the total rehabilitation of the Laryngectomee.

WebWhispers was started in 1996 for those who had questions about larynx cancer treatments, surgery, recovery, and what life is like after laryngectomy surgery. They are now the largest support group for individual laryngectomee survivors of larynx and other throat cancers. WebWhispers offers advice from those who have been there and education at the time it is needed. WebWhispers members support patients in their rehabilitation.

 

Read Our Blogs
Cancer Matters: timely topics
Our Cancer: for caregivers

 

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Head and Neck Surgery

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