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The Sidney Kimmel Comprehensive Cancer Center

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Cancer Survivorship

At Johns Hopkins Kimmel Cancer Center, we believe that survivorship begins on the day of cancer diagnosis. Our health care providers work with newly diagnosed patients to ensure that their life goals remain on track when possible. We no longer want cancer patients just to survive – we want them to thrive. Beyond treating and managing patients’ cancer, we focus on their quality of life. Do you want to keep working during your treatment? Do you want to have children after treatment? Our experts will work with you the best we can. We are committed to developing innovative ways to further improve life during and after cancer treatment.

Cancer Survivorship: Beginning from Diagnosis Through Treatment and Beyond

This short, to-the-point video provides information for newly diagnosed, stage 0-3, cancer patients. It emphasizes the importance of survivorship care, starting at the time of diagnosis. This includes making the patient's life goals known to the treatment team and incorporated into the treatment planning process so that these goals are preserved and not forfeited to cancer and its treatment.

 

Throughout cancer patients’ journeys at Johns Hopkins, we aim to educate patients and their caregivers so they can best participate in treatment decisions and health management. Part of our mission involves making sure patients keep in communication with their primary care providers and/or gynecologists. During active treatment, primary care providers may be less involved in patients’ care, but they still play a role in health management tasks like providing flu or pneumonia shots, performing routine pelvic or breast exams, or conducting physical exams prior to surgery. As your treatment ends, our team will develop a survivorship care plan for you summarizing your medical care and outlining what needs to happen going forward.

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Challenges of Childhood Cancer Survivor Study

Researchers at the Kennedy Krieger Institute and Johns Hopkins are interested in learning more about the experiences and challenges of childhood cancer survivors and their caregivers related to the transition back to school after a diagnosis of cancer.  If you have a school-aged or older child who has been treated for cancer and has returned to a formal school setting, we would love to have your participation in this survey. The survey is anonymous and should take about 20 minutes to complete; this research study has been approved by the Johns Hopkins IRB. After completing the survey you may choose to enter your email address (not required) and be eligible to win one of two $50 gift cards. Thank you in advance!

Participate in the survey 

If you have any questions, please contact:

Elizabeth Offermann
Kennedy Krieger Institute
OffermannE@kennedykrieger.org

Principal Investigator:
Lisa Jacobson, PhD, ABPP
Kennedy Krieger Institute
Johns Hopkins School of Medicine
IRB00126818 (approved: 4/10/2017)

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This site is for survivors and their caregivers at any stage of treatment, offering information about concerns related to survivorship before, during and after cancer treatment; guides to insurance and employment; survivor research ongoing at our center; and a variety of programs and services available to survivors.