Support Groups

Chordoma patients

This international, online support group is for all those affected by Chordoma. It can be found at http://groups.msn.com/chordoma. To join as a member, email chordoma@groups.msn.com. The group’s aim is to offer each other friendship, support and information.

Ependymoma Support Groups

The Adult Ependymoma Online Support Group, http://www.braintrust.org/adultependymoma.htm, is a private email list consisting of over 100 patients and caregivers. The self-described tight-knit online community is a strong emotional and medical support system for its members. The group emphasizes the treatment aspect of this unique kind of tumor, not the search for a cure to the disease. The goal is to support survivors before, during and after treatment.