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Support Groups

Chordoma patients

This international, online support group is for all those affected by Chordoma. It can be found at http://groups.msn.com/chordoma. To join as a member, email chordoma@groups.msn.com. The group’s aim is to offer each other friendship, support and information.

Ependymoma Support Groups

The Adult Ependymoma Online Support Group, http://www.braintrust.org/adultependymoma.htm, is a private email list consisting of over 100 patients and caregivers. The self-described tight-knit online community is a strong emotional and medical support system for its members. The group emphasizes the treatment aspect of this unique kind of tumor, not the search for a cure to the disease. The goal is to support survivors before, during and after treatment.

 

Scheduled for Neurosurgery at Johns Hopkins?

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Related Links

CME Event
Fourth Annual Spine Workshop: September 5-6, 2014

A Framework for Spinal Column Tumor Management
Daniel Sciubba, M.D. helps you understand neurosurgical treatment planning for tumors of the spinal column, along with developing innovations in radiation and chemotherapy.

COLLABORATIONS IN DISCOVERY
A Rare Chance to Cure A Difficult Cancer
Researchers at the Johns Hopkins Neurosurgical Spine Center are developing new surgical techniques to remove chordomas.

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