Many people and families with neurofibromatosis or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.
Children's Tumor Foundation
Neurofibromatosis, Inc. Mid-Atlantic
Advocure for NF2
Advocure for NF2 is an advocacy group which offers resources on research and drug clinical trials for NF2 throughout the world.