Support Groups

Many people and families with neurofibromatosis or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.

	Children's Tumor Foundation The Children's Tumor Foundation offers resources on neurofibromatosis (NF) research opportunities, as well as information on the condition.
	Neurofibromatosis, Inc. Mid-Atlantic Neurofibromatosis, Inc. Mid-Atlantic provides information and support to people with neurofibromatosis (NF), their families and anyone interested in the disorder.
	Advocure for NF2 Advocure for NF2 is an advocacy group which offers resources on research and drug clinical trials for NF2 throughout the world.