At the Johns Hopkins Comprehensive Neurofibromatosis Center, a team of doctors and other health care professionals works together to provide the most effective and safest treatment possible for patients with neurofibromatosis. The core members of the Johns Hopkins Comprehensive Neurofibromatosis Center care team include genetic counselors, neurologists, neuro-oncologists, neurosurgeons, and vascular surgeons.
From left to right: Dr. Allan Belzberg, Bronwyn Slobogean PA, Amanda Bergner, Dr. Jaishri Blakeley,
Shannon Langmead RNP, Dr. David Wolf
Our core team members
- Associate Professor of Neurosurgery
- Senior Genetic Counselor
Clinical and Research Coordinator
- Assistant Professor of Neurology, Oncology and Neurosurgery
Director, The Johns Hopkins Hospital Comprehensive Neurofibromatosis Center
- Clinical Fellow, Neuro-onology
Other members of the neurofibromatosis care team
Other doctors and health care professionals with special expertise in neurofibromatosis may also be part of the care team. These could include:
- Audiology
- Dermatology
- Genetics
- Oncology
- Ophthalmologists
- Orthopedic surgeons
- Otolaryngology (ENT)
- Pain Medicine
- Plastic surgeons
- Radiology
The specific doctors and health care professionals involved will depend on the patient’s tumor, symptoms and treatment.
Social workers will also help coordinate care after the patient leaves the hospital.
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