The Muscular Dystrophy Association (MDA) was founded in 1950 to provide medical services and promote research for patients with neuromuscular disease. In the late 1960s, The Johns Hopkins Hospital became the site of one of the original clinics associated with the MDA. To this day, the Muscular Dystrophy Center at Johns Hopkins remains one of the largest of the 235 hospital-affiliated MDA clinics, treating more than 1400 patients each year.
Although muscular dystrophy has always been a focus of the MDA, the association supports people with 43 diverse neuromuscular diseases. At every visit to the Muscular Dystrophy Center at Johns Hopkins, patients have the opportunity to meet with MDA representatives to learn what services are available to them.
For registered individuals, the MDA provides the following free services:
• Support groups
o Adults with neuromuscular diseases
o ALS support group
o ALS caregivers’ support group
o FSH dystrophy support group
o MDA teen group
o MDA parent group
o Southern Maryland MDA family group
• MDA Summer Camp for ages 6-21
• $2000 every five years towards the purchase of wheelchairs, scooters, braces, or speech therapy equipment
• $500 every year towards wheelchair repairs
• Transportation assistance to a patient’s nearest available clinic
• Loan closet (used equipment in good condition may be received or donated to others)
• The bimonthly award-winning publication “Quest” which publishes articles on all aspects of living with a neuromuscular disease and updates on research findings.
The support of the MDA has helped make the Muscular Dystrophy Center at Johns Hopkins a place where patients find care for all aspects of their condition. Not only are their various health needs met, but the social and financial needs associated with their disease are also addressed. This unique, comprehensive care is rewarding for all who are involved in the Hopkins Center—health care providers, patients and family members.