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Ataxia Center

The Ataxia Center at Johns Hopkins offers a multidisciplinary approach to the identification and treatment of cerebellar ataxia. Initiated through the generosity of a private donation from the Gordon and Marilyn Macklin Foundation, and with the support of the National Ataxia Foundation and its Chesapeake chapter we began our center opened in early 2008.

Neurologists familiar with the nuances of these disorders work with speech therapists, swallowing experts, physical and occupational therapists as well as genetic counselors, ophthalmologists and psychiatrists to see the patient as a whole person. Many patients have been told by others that ataxia is untreatable, while we know that with the right adaptive devices, the right advice, the judicious use of medications, proper exercise and with patient and caregiver education we are able to substantially improve the quality of life for our patients.

Our center also serves as a clearinghouse for information, and a way to get involved in scientific studies in our quest to better understand and treat ataxia. Another of our other missions is public and physician education. We have programs that involve students at many educational levels from undergraduates to clinical traines who learn from our experts and perhaps, more importantly, from our patients.

At Johns Hopkins our mission is to care for patients, to educate, and to make scientific advances in the fight against disease. Our center strives to do all three. If you or a loved one has ataxia, please consider contacting us for more information. Our dedicated coordinator Katie is anxious to help you.

 
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September 26, 2009
CC-NAF/JHU Ataxia Center Picnic
Click here for details.

Report on the Chesapeake Chapter Annual Medical Meeting Read now

2009 Fellows in Ataxia Edification Selected

The Gordon and Marilyn Macklin Foundation and the JHU Ataxia Center were pleased at the quality and quantity of applicants for this year’s Macklin Mini
Fellowship.

We believe the Macklins would be delighted that so many talented, young persons are interested in learning more about ataxia and the individuals and families facing its challenges. More

 

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