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Neurology and Neurosurgery

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Treatment for Neurofibromatosis (NF) Type 1

Treatment for neurofibromatosis type 1 (NF1) depends on the symptoms that a person has:

Symptoms:Treatment Options:
ADHD
  • medications
  • behavioral therapy
bony lesions
  • bracing
  • observation
  • surgery
brain tumors
  • observation
  • surgery
  • drug therapy currently under clinical investigation
dermal neurofibromas
  • observation
  • surgery
  • drug therapy currently under clinical investigation
learning disabilities
  • IEP
  • medications
  • clinical trials
malignant peripheral nerve sheath tumors
  • chemotherapy
  • radiation therapy
optic pathway glioma
  • observation
  • chemotherapy
pain
  • medications
  • acupuncture
  • behavioral interventions
plexiform tumors
  • chemotherapy
  • radiation therapy
  • surgery
  • drug therapy currently under clinical investigation
vascular complications
  • surgery
  • observation
  • medications

Other treatment options for neurofibromatosis type 1 (NF1)

  • Observation and evaluation are often the primary treatments for tumors associated with NF1.
  • Surgery may be considered for some tumors.
  • Radiation therapy, chemotherapy, or both may be used to treat some tumors associated with NF1.

While there is currently no cure for NF1, there are clinical trials available at the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center.

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.

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Maryland Patients

For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337

 

Traveling for Care?

Whether you're crossing the country or the globe, we make it easy to access world-class care at Johns Hopkins.

Outside of Maryland (toll free)
410-464-6713

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International Patients
+1-410-502-7683

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