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Comprehensive Neurofibromatosis (NF) Center

Children's Tumor Foundation

The Johns Hopkins Comprehensive Neurofibromatosis Center (JHCNC) is part of a national and international collaboration of medical centers and providers seeking to find the best treatments for patients and to advance research. Their goal is to work with patients' primary care doctors to provide a medical home for this life-long, complicated syndrome. Care providers at the Johns Hopkins Comprehensive Neurofibromatosis Center (JHCNC) are part of one of the largest brain and peripheral nerve tumor centers in the world. The clinic is designated as an affiliated clinic of the Children’s Tumor Foundation.

What We Treat

We have expertise in managing neurofibromatosis type 1neurofibromatosis type 2 and schwannomatosis. With our multidisciplinary team of care providers from several specialties within Johns Hopkins Medicine, we are able to offer patients comprehensive care and management, as well as access to progressive therapies and clinical research opportunities.


New Research Grant

Physician scientists dedicated to researching treatments for plexiform neurofibromas in NF1 may apply for the Francis S. Collins Scholars’ Program in Neurofibromatosis sponsored by the Neurofibromatosis Therapeutic Acceleration Program (NTAP).

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.