Johns Hopkins doctors established The National Familial Pancreas Tumor Registry in January 1994 and is the largest-known registry of hereditary pancreatic cancer. Any patient with a diagnosis of pancreatic cancer as well as anyone with an immediate family member who has or has had pancreatic cancer is invited to participate in the Registry. The Registry is a database of information that provides researchers with clues to the behavioral patterns of pancreatic cancer and is intended to help all family members affected by the disease, for generations to come. Contact the Registry at 410-955-3502 or firstname.lastname@example.org. (Alternate phone number: 410-955-3512.)
The data led to the development of a novel computer software tool, called PancPRO, that identifies people at risk of developing pancreatic cancer.
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