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Cancer Survivorship Resources

The National Cancer Institute estimates that there are nearly 12 million cancer survivors.  Resources and services are available for a wide variety of concerns and needs.  More information on survivorship education and services available through Johns Hopkins include the Breast Cancer Survivorship Program, Michael J Garil Leukemia Survivorship Program and Colorectal Survivorship Clinic.

Is there a survivorship resource or service not included in this list?  Please email us the link.

Cancer Rehabilitaion Program
Caregiver Support
Counseling
Employment
Fertility
Financial and Legal Resources
General Information Resources
Higher Education (College)
Integrative Medicine
Late Effects of Cancer Treatment
Mobile Apps
Nutrition
Pain Care
Palliative Care
Physical Rehabilitation and Exercise
Sexual Health
Smoking Cessation
Support Groups
Resources for Young Cancer Patients

Caregiver Support


It is important for cancer survivors to have support from their caregivers, usually a family member, friend or loved one. Caregivers, in turn, also need support and guidance during the cancer treatment process and after treatment ends. Caregiver community resources include:


Breast Cancer Survivorship Care at Johns Hopkins – online information and videos

Breast Cancer Chronicles – Caregiving topics on Lillie Shockney’s Breast Cancer Chronicles blog on Yahoo. Shockney is the administrative director of the Johns Hopkins Avon Foundation Breast Center, a nurse and two-time breast cancer survivor.

CancerCare -- free, professional support services (counseling and support groups, educational publications and workshops, and financial assistance) to individuals, families, caregivers, and the bereaved.

Cancer Support Community -- an international non-profit providing support and education to people affected by cancer.

C-Answers video – cancer caregiver video topic narrated by Laurie Singer Sievers.  (This video is one of several segments devoted to the “Fine Print of Cancer,” featuring practical advice from the staff of the Patient and Family Services department at the Johns Hopkins )

Imerman Angels – matching service for “cancer fighter or survivor” and caregivers with other patients, survivors and caregivers

Our Cancer blog – blog written by Laurie Singer Sievers, caregiver for the late Leroy Sievers. Our Cancer is an extension of Leroy’s blog, My Cancer, and Laurie’s continuation of the blog, Our Cancer, both of which were hosted by National Public Radio.  Our Cancer is now hosted by the Johns Hopkins Kimmel Cancer Center.

Walking on Eggshells: A Caregivers Guide – Amy Sales, a trained grief counselor at Johns Hopkins with over twenty years of experience, creates a caregivers guide to practical, real-life direction on what to do and what to say when a loved one is faced with life-threatening illness.

Young Cancer Spouses – provides support for young spouses of adults with cancer

Survivorship Committee for the Maryland Cancer Collaborative, MD Cancer Plan:
Guide to Cancer Survivorship
Cancer Resource Guide for Treatment Planning


Counseling


Coping and dealing with cancer treatment and survivorship is different for every person. Counseling services are provided by the following organizations:


CancerCare – free, professional support services (counseling and support groups, educational publications and workshops, and financial assistance) to individuals, families, caregivers, and the bereaved.

Cancer Counseling Center at the Johns Hopkins Kimmel Cancer Center – private and group counseling services offered for Johns Hopkins cancer patients and family members

Cancer Survivors Network – offers peer support and online information contributed by its members. Please note that contributions reflect personal views, feelings, and experiences, not those of health care professionals.

Group Loop– professionally-moderated and mentored online support groups for teens and young adults affected by cancer, offered through the Wellness Community.

Planet Cancer – cancer comics, advice, "cancertainment," and news geared to young adults

Special Love– Non-profit organization focused on helping childhood cancer survivors and their families enjoy life by providing support, camps, weekend retreats, and other community based services.

Employment


Cancer survivors can experience job loss and discrimination.  These resources outline information on your employment rights and responsibilities and job listings:


The U.S. Equal Employment Opportunity Commission – Q&Answers about cancer in the workplace and the Americans with Disabilities Act

Cancer and Careers -  online support, teleconferences and coaching

Livestrong – information on whether you are at risk for employment discrimination and laws that protect cancer survivors

Jobs for Survivors – offers listing of job opportunities for cancer survivors
   
National Coalition for Cancer Survivorship – information on laws that protect cancer survivors from employment discrimination


Fertility


Fertility and parenthood are concerns for many cancer survivors. Information about the effects of cancer treatment on fertility, online support and additional resources are provided by:

Breast Cancer Survivor Care at Johns Hopkins – online information and videos

Fertile Hope – Livestrong – information and support for cancer patients and survivors, including financial assistance for fertility preservation services

Fertility Today –magazine written primarily by American Board-certified reproductive endocrinologists and other reproductive professionals

National Coalition for Cancer Survivorship (NCCS), Sexuality and Fertility –  online information and advocacy

Resolve – The National Infertility Association – non-profit organization, online information and support


Young Cancer Spouses  – provides support for young spouses of adults with cancer

Financial and Legal Resources


Cancer Legal Resource Center – telephone assistance line providing information on laws and resources for cancer patients and survivors and legal resource guide for health care professionals; a program of the Disability Rights Legal Center and the Loyola Law School Los Angeles

Patient Resource Guide- Includes names and web addresses of many organizations that offer financial assistance to people affected by cancer.


General Information Resources


American Institute for Cancer Research – online information for survivors


CancerCare -- free, professional support services (counseling and support groups, educational publications and workshops, and financial assistance) to individuals, families, caregivers, and the bereaved

Cancer Survivors Network – offers peer support and online information contributed by its members. Please note that contributions reflect personal views, feelings, and experiences, not those of health care professionals

CaringBridge – free, private Web sites for connecting families and friends with patients

Help for Cancer Caregivers - resources for cancer patients and caregivers

HopeWell Cancer Support - helping patients and loved ones cope with the life-changing impacts of a cancer diagnosis.

Livestrong – online information, support and advocacy for cancer survivors

Living Beyond Breast Cancer– educational resources for women affected by breast cancer

National Cancer Institute – online information on life after cancer, follow-up care, statistics, and research

National Cancer Survivors Day – annual celebrations hosted by hospitals and organizations nationwide

National Coalition for Cancer Survivorship – information and advocacy, cancer survival toolbox

People Living with Cancer – online information and resources provided by the American Society of Clinical Oncology

Sisters Network Mission  – advocacy for breast cancer in the African American community

Thyroid Cancer Survivors' Association, Inc. – support, education, and communication for thyroid cancer survivors, families and friends

Ulman Cancer Fund for Young Adults – support and education for young adults with cancer

Young Survival Coalition – resources and online support for women under the age of 40 with breast cancer

Higher Education


Ped Onc Resource Center – lists resources on scholarships for childhood cancer survivors

The Komen College Scholarship Program – scholarships for young breast cancer patients or children of breast cancer patients

The SAMFund for Young Adult Survivors of Cancer – grants and scholarships to young adult survivors

Integrative Medicine


The Johns Hopkins Integrative Medicine and Digestive Center – acupuncture, educational classes, lymphedema support, nutritional counseling, Chinese medicine, massage therapy, and mental health counseling specifically tailored for cancer patients

The Claudia Mayer Center at Howard County General Hospital – acupuncture, mind/body classes, social work, etc

Healing Point Acupuncture and Healing Arts– acupuncture, therapeutic massage, Qi Gong, yoga, meditation

Late Effects of Cancer Treatment

Breast Cancer Survivorship Care at Johns Hopkins – information, resources, videos and support

Michael J Garil Leukemia Survivorship Program at Johns Hopkins – information on late effects, resources and support for childhood and adult leukemia survivors

Patient Resource Publishing – guide on treatment side effects

Ped Onc Resource Center – lists bibliographies of major research and information on late effects of cancer treatment

Mobile Apps

National Coalition for Cancer Survivorship – on-the-go guide for patients and caregivers to build lists of practical questions for conversations with health care professionals

Physical Rehabilitation and Exercise

Physical fitness and rehabilitation after cancer treatment is an important part of survivorship. Resources include:

American Institute for Cancer Research – online information for survivors

Livestrong Rehabilitation – online information

Oncology Rehab Partners –  information on products and research

Active Survivors Network
Provides programs and personal training to help regain strength and a healthy, active lifestyle
Program for Breast Cancer Survivors (post surgery) current
Program for Breast Cancer Survivors (post treatment) begins January 2011
Contact: Kay Carney 410-823-0562

The Claudia Mayer Center at Howard County General Hospital – acupuncture, mind/body classes, social work, etc

Healing Point Acupuncture and Healing Arts – acupuncture, therapeutic massage, Qi Gong, yoga, meditation

The Maryland Athletic Club (The MAC)
Healthy Start at The MAC
60 days for $60- a supervised exercise program to "get you started"
Timonium- 110 W. Timonium Rd., Timonium,, MD 21093   410-453-9111
Harbor East- 655 South President St., Baltimore, MD 21202   410-625-5000
Hunt Valley- 11212 McCormick Rd., Hunt Valley, MD 21031   410-584-7888

HopeWell Cancer Support
Yoga Classes
Stretch and Tone Classes
10628 Falls Road, Lutherville, MD 21093  (410)-832-2719

Evolutions Body Clinic- Health, Fitness, Wellness
Ribbon Recovery Scholarship Program for breast cancer survivors
1834 George Avenue, Annapolis, MD 21401   410-224-7220
Contact Jessica Milligan

Lynne Brick's Health and Fitness Clubs/Brick Bodies
60 days for $60 (free to cancer survivors while in treatment with a doctor's note)
"Moving On' free program for restoring a healthy, active lifestyle for recovering breast cancer patients
14 days free trial membership
Reisterstown - 2 Charley Dr., Reisterstown, MD 21136   410-833-3386
Belvedere Square- 5911 York Road, Baltimore, MD 21212   410-433-8200
Perry Hall- 9634 Belair Road, Baltimore, MD 21236   410-529-2348
Downtown- 218 N. Charles Street, Baltimore, MD 21201   410-547-0053
Owings Mills- 9950 Reisterstown, MD 21117   410-363-4600
Padonia- 212 W. Padonia Road, Timonium, MD 21093   410-252-5280
GreenSpring- 10803 Falls Road, Lutherville, MD 21093   410-825-0550

Strength & Courage
Exercises for breast cancer survivors
DVD contains exercises to help breast cancer survivors regain upper body strength and flexibility and improve posture, plus sections on aerobic conditioning and lymphedema
P.O. Box 156, Sewickley, PA 15143

Ulman Cancer Fund for Young Adults
Cancer to 5K - a progressive run/walk program designed to introduce and/or reintroduce cancer survivors to training for and completing a 5K road race.
12-week training program limited to 15-20 participants

YMCA of Maryland
Exercise programs available at Health and Wellness Centers and Aquatic Centers
Baltimore City- 900 E. 33rd Street, Baltimore, MD 21218      410-889-9622
Towson- 600 W. Chesapeake Ave., Towson, MD 21204   410-494-7778
Parkville- 8910 Waltham Woods Road, Parkville, MD 21234   410-663-1300
Harford County- 101 Walter Ward Blvd., Abingdon, MD 21009   410-679-9622
Carroll County- 1719 Sykesville Road, Westminster, MD 21157   410-848-3660
Howard County- 4331 Montgomery Road, Ellicott City, MD 21043   410-465-4334
Catonsville- 850 S. Rolling Road, Catonsville, MD 21228   410-747-9622
Perry Hall- 4375 Ebenezer Road, Perry Hall, MD 21236   410529-1999
Dundalk- 120 Trading Place, Dundalk, MD 21222   410-285-7616
Randallstown- 3505 Resource Drive, Randallstown, MD 21133   410-469-4272

Lifebridge Health and Fitness
Pilates for Breast Cancer Survivors
8 week wellness program
Contact: Donna Bair 410-318-6802
1836 Greene Tree Road
Baltimore, MD 21208

Nutrition

Leading a healthy life after cancer includes proper nutrition during and after cancer treatment.  Nutritional advice and resources are provided by:

American Cancer Society – information, support and advocacy

American Institute for Cancer Research - Top foods that fight cancer

Academy of Nutrition and Dietetics – information on eating a healthy diet

GIST Support International (GSI) – support for gastrointestinal stromal tumor (GIST cancer) patients; information on nutrition for cancer survivors

Johns Hopkins Kimmel Cancer Center, Patient and Family Services Education – tips on nutrition for cancer patients

Know Cancer – online community

National Comprehensive Cancer Network – the Johns Hopkins Kimmel Cancer Center is a member of the National Comprehensive Cancer Network, a non-profit alliance of 21 of the world’s leading cancer centers, which develops cancer treatment guidelines for health care professionals and patients

Dr. Mike Evans Discusses the Health Benefits of Exercise:



American Institute for Cancer Research – online information for survivors

Sexual Health

Cancer treatments may affect certain aspects of sexual health. Information on concerns and resources can be found at:

National Coalition for Cancer Survivorship – information and advocacy

Smoking Cessation

Resources for information on smoking cessation programs can be found at:

Smoke Free.Org –online support and information

Pain Care

American Pain Foundation – support and educational information about dealing with and treating pain

Palliative Care

Palliative care focuses on the total wellbeing of cancer patients and survivors.  Palliative care information and resources are available at:

American Society of Clinical Oncology – practice guidelines for health care professionals and patient information


Resources for Young Cancer Patients

Ulman Cancer Fund for Young Adults – support and education for young adults with cancer

Young Survival Coalition– resources and online support for women under the age of 40 with breast cancer

Young Cancer Spouses  – provides support for young spouses of adults with cancer

 

Read Our Blogs
Cancer Matters: timely topics
Our Cancer: for caregivers

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