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Frequently Asked Questions

How do I set up an appointment with the Johns Hopkins HCM Center of Excellence?

We usually schedule appointments over the phone. Either you or your referring doctor can call us at 410-502-7974. If you do not get our coordinator on the line, please feel free to leave a message with your contact information and we will call you back the same day or the next day.

How do I prepare for a visit to your center?

We usually contact your referring doctor and obtain all your medical records. If you have other records or notes please feel free to mail or fax them to us. We suggest you write down any questions or information you would like to share or ask us during the visit and bring it with you or feel free to send us this document ahead of the visit. Several of our tests will need you to wear comfortable clothing and appropriate footwear, like sports shoes.

Please let us know if you have any medical concerns, have any devices implanted in you, particularly cardiac devices. If you have a defibrillator (ICD) please provide information on the manufacturer, and which doctor’s office conducts your regular follow-up for the ICD and their contact telephone number.

What is included in a typical HCM Center visit?

To make the best use of your time at the initial HCM visit and to optimally manage your HCM, the HCM specialist needs several pieces of information. Please plan on spending the better part of a day with us. Our usual testing will include the following:

  1. A 3-part ultrasound (echocardiogram)
  2. MRI scan – magnetic resonance scan
  3. ECG – electrocardiogram
  4. Clinic visit for one hour with our HCM specialist

The entire visit may take up to six hours. If you wish we can split it up into two visits. Also, if convenient to you, we suggest you do all the testing on one day and come back for the visit so that all the test reports are available. In any case, our clinic goal is to make this visit as convenient as possible for you and your family. We will accommodate and work with you in scheduling your tests and visit. If you need to be seen earlier in the day or later, please let us know and we will work with your needs as we schedule the various appointments.

How often do I follow up?

The follow up visits depend on the findings noted in the interview, examination and test results. There may be a need for several repeat visits but in most mild cases we follow patients on a yearly basis.

What if I only have a question?

We are happy to take calls and answer your questions about HCM. Please note that our responses may be more generic rather than specific depending on the amount of information you are able to provide us.

View a slideshow of how hypertrophic cardiomyopathy presents itself through imaging.


To make an appointment at the Johns Hopkins Hypertrophic Cardiomyopathy Center of Excellence, please call 410-502-7974.

 

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