ARVD/C researchers are committed to gaining a better understanding of ARVD/C and developing ways to manage it. Johns Hopkins has the only program solely dedicated to understanding ARVD/C. Our program has two main registries: the ARVD/C Patient Registry and the ICD Registry, which house multiple substudies within.
- Clinical and Genetic Investigations of Right Ventricular Dysplasia - Johns Hopkins ARVD/C Patient Registry – This registry keeps track of patients and family members with ARVD/C, allowing us to understand the cause and course of ARVD/C, including genetic aspects of ARVD/C.
- Epicardial Ablation Study - a subset of the clinical and genetic investigations
- Predictors of ICD Firing in Right Ventricular Dysplasia –This study focuses on the psychosocial impact on ARVD/C patients living with an ICD, as well as what types of activities result in the ICD to fire.
Before you join any study, you should consider whether or not participating in medical research is right for you.
ARVD/C studies are being performed throughout the world. Find a participating location.
To learn more about ARVD/C research, call us at 410-502-7161.