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Email Crystal Tichnell at firstname.lastname@example.org.
Genetic Counselor in the Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy Program at Johns Hopkins Hospital
I coordinate diagnostic testing and consultations within our program as well as provide education and counseling to patients and family members affected by ARVD / ARVC. I also manage the program’s website and respond to inquiries and requests for information. In addition, I organize the program’s annual seminar attended by patients and families affected by ARVD / ARVC.
I have a Bachelor’s degree in Biology and Master’s Degree in Genetic Counseling from the University of Maryland, Baltimore.
I have been given an amazing opportunity working with such a devoted group of patients and families affected by a rare inherited heart condition. While trying to find new ways to adapt to life as a patient or family member living with ARVD / ARVC, these individuals and families still find time to participate in our very important research. I am extremely grateful to all who have shared their own story of living with ARVD / ARVC, as well as those who have shared the memory of a loved one lost to ARVD / ARVC. It has been a pleasure and honor to work with these families over the years and I look forward to many more years as we continue to work together to solve the mysteries of ARVD / ARVC.
I am a member of the National Society of Genetic Counselors, as well as the Cardiovascular Special Interest Group.
Publications can be accessed at http://www.ncbi.nlm.nih.gov/pubmed