Assistant Professor of Neurology
The Johns Hopkins ALS Clinic
Department of Neurosurgery
Johns Hopkins Outpatient Center
601 N. Caroline Street
Baltimore, MD 21287
ALS, Muscular Dystrophy
Lora L. Clawson, MSN, CRNP is Director of ALS Clinical Services at Johns Hopkins. Her educational background includes a Diploma in Nursing from the Maryland General Hospital School of Nursing in 1978 and her Bachelor of Science Degree in Nursing from the University of Maryland in 1986. She obtained her MSN from the Johns Hopkins University School of Medicine and earned her CRNP license in the summer of 1999. She then launched the Johns Hopkins Multidisciplinary ALS Clinic on October 4, 1999.
Ms. Clawson now specializes in coordinating ALS clinical care management, clinical research studies, and community fundraising for ALS clinical services, which includes the $2 million Cal Ripken/Lou Gehrig donation to Johns Hopkins in 1995. Her ALS career began at Hopkins over 20 years ago as a Research Nurse Coordinator. She became the facilitator of the Baltimore ALS Support Group and the Salisbury ALS Support Group. As an ALS expert, Ms. Clawson has coordinated over 25 ALS research studies, co-authored over 30 publications, and over 40 abstracts at ALS conferences around the country. She has chaired the National Neuromuscular Nursing Advisory Board and the Mid-Atlantic Regional Advisory Board for ALS, served on many committees such as The Robert Wood Johnson Excellence in End of Life Care in ALS, the ALSA Clinic Certification Committee, the El Escorial Revised Diagnostic Criteria, World Federation of Neurology, ALS Research Group, Hospice Network of Maryland, and the ALS Northeast Consortium Executive committee. Ms. Clawson was the recipient of the Vickie Appel Award for Excellence in ALS Clinical Care in January 1999.
Ms Clawson was appointed to the faculty of the Department of Neurology in 1998. Now an Assistant Professor, she teaches at the Johns Hopkins University School of Nursing and serves as a mentor and instructor to undergraduate and graduate nursing students.
Ms. Clawson sees patients at the Johns Hopkins Outpatient Center located in Baltimore on 601 North Caroline Street.
When ALS Trials Are No Trial
NeuroLogic, Fall 2008